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Lynda

Scleroderma Systemic

6 posts in this topic

Hi

 

Wondering if anyone has had any difficulty with swallowing water. I am on oxygen 24/7. I noticed a problem in choking when drinking thin liquids like water, tea and juice. Would choke when trying to take any meds. Now I can chew ice and food with or without gravy or any sauce.

 

Saw doctor and asked for a referral to a throat specialist but she thought it was sclero related.

 

Anyone out there having similar problem?

 

Lynda

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Hi Lynda,

 

This year I developed coughing with eating and drinking. My internist ordered a swallow study at the local hospital with the speech therapist. When you have this study they will have you swallow liquids and solids while doing xray of the throat. This test is very easy to do and shows clearly your swallowing problem. My problem is everything I swallow is refluxing from the upper esophageal sphincter back into my throat and I have developed a pouch in my throat. There are quite a number of different problems that could be causing you symptoms that will show up on this study. There may be swallowing exercises that the speech therapist can give you to help your problem. In my opinion is not acceptable to just say it caused by sclero and not treat it if possible. Choking with eating can cause aspiration so it does need to be investigated in my opinion.

 

Best Wishes,

Carol Lee

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Hello Lynda

 

So did you get a referral? Carol's quite right it should be investigated and yes it probably is sclero related BUT that doesn't mean the problem shouldn't be investigated. Let us know how you get on.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I agree, you should see your Sclero specialist. He/she would likely run esophagus tests...and anything else needed to rule it in or out as the case may be.

 

Hope you keep us updated.


Sending good wishes your way!

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Also there are products that thicken water a bit for those who have difficulty swallowing thin liquids. But I too think you need a proper diagnosis to know what the correct thing to do is.

 

I too had a couple of swallowing tests and they were very easy. Good luck with getting this resolved.

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Lynda,

I'm going to ditto the others in saying that you shouldn't ignore this allowing problem. You should have it checked out. Choking on liquid can cause you to aspirate which is definitely not good for the lungs. I've had the swallowing test that showed I had Oropharyngeal dysphagia. The speech therapist that was there recommended that when I swallowed, to tilt my head down, then swallow. This has helped me tremendously in swallowing pills and to prevent choking on liquids and foods. Very simple, but it works for me.

 

Please talk to your doctor and let us know what you find out.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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