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Amanda Thorpe

Postcapillary pulmonary hypertension anyone?

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Hello All

 

So I've just read my copy of the report of my pacemaker implantation and it ends by saying I should be followed up in the pulmonary hypertension (PH) clinic...really...do I have PH then? Initially this somewhat alarmed me because back in December my copy of a letter from the rheumatologist to my doctor mentioned myocardial fibrosis and PH, in then turned out that I did have myocardial fibrosis as discovered by an ECHO in the following April.

 

From what I can make out postcapillary pulmonary hypertension can result from left sided heart problems which I have hence the pacemaker, with normal wedge pressure being 6-12mmHg and I think normal PA pressure is 25mmHg. That then means my PA pressure is normal(?) but my wedge pressure is high(?) which means what exactly? Now I'm confused and will try and speak to the heart failure specialist nurse for some enlightenment!

 

I know others here have PH but anyone have PPH or ever come across it before?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I wish I could help but this is all confusing to me. Last January I was diagnosed with minor PH. I am not being treated for it currently. My sclero specialist said the high normal was 25 but with scleroderma they start looking at it at 20. I got my January numbers from my doctor yesterday.

 

Pulmonary artery pressure was 39/16

right atrial pressure was a mean of 5

right ventricular pressure was 37/16

pulmonary capillary wedge pressure was a mean of 11

Left ventricular pressure was 145/19

Aortic pressure was 142/73.

 

I have no idea what these mean. Any help? My pulmonologist and cardiologist said no treatment necessary at that time, my sclero specialist wanted to put me on Letairis and then the transplant came along and my nephrologist said no. After my CT scan this December I may need another heart catheterization and I have already decided to have it at my scleroderma medical center as she said this test did not give her all the numbers she needs.

 

miocean


ISN Artist

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Hi Amanda,

 

I also have PA = 25 of something. Cardiologist said it is border value but in his report he wrote that there is no pulmonary hypertension. I have never heard of wedge pressure(?). I have never heard about lot of things.

 

Keep enlightening us on this issue.

 

Erika

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Hi Amanda,

 

I think we are going to dub you our resident patient expert on postcapillary pulmonary hypertension. I know this can occur with systemic scleroderma, but I don't recall anyone talking about this particular type on the forums, before now.

 

It's possible that they might not think you have postcapillary pulmonary hypertension right now, but they might want you screened or monitored for it, just in case. It would be simple enough to figure out that you are at risk for it.

 

Will you keep us posted on what you find out in this regard? I'm going to send you some extra flowers, just to help tide you over until then. :flowers:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Shelley

 

I would have to be the only one wouldn't I. I will indeed let you know what happens!

 

Take cae.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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