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Katie_Notts

Losing feeling in toes.

7 posts in this topic

I have recently noticed that the I have lost feeling in the end of one of my toes - I have limited systemic sclerosis and suffer with Raynauds. I just wondered if anyone else has this? The feeling isn't gone completely but feels permanently numbed.

 

Thanks

 

Katie

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Hi Katie,

 

I want to welcome you to Sclero Forums. As it happens, this is one thing I've been spared, but I'm sure others will pitch in. It is, of course, important for you to see your primary care doctor about this. They'll need to consider a zillion things, in addition to scleroderma, as possible causes, including things like diabetes. So no matter if a million of us pitch in and say yes, we have this too and we have scleroderma, it still won't absolve you from a doctor visit to find out what's causing it in your particular case.

 

And it'd be great if you share with us what you find out, too! I hope it's something that can be easily addressed, and hopefully have your toes restored to normal sensation, as well.

 

Here are some welcoming hugs for you.

 

:emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Katie

 

Welcome to this friendly and helpful forum. :bye:

 

I also have Systemic Limited Sclero and suffer with Raynaud's. It mostly affects my hands but I have noticed it a little on my feet. On one occasion I rashly went paddling in the sea on a cool day and developed very bad Raynaud's in my toes.......and serve me right for doing something so idiotic!! ;) :lol:

 

As Amanda has said, it's always worth a check with your doctor, if only to set your mind at rest.

 

I'm looking forward to reading your future posts. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Katie

 

Welcome to the forums! Well I am going to be very boring and echo what has already been said, you need to see your general practitioner/rheumatologist about it. It could be scleroderma but then again...

 

When we have scleroderma we want to pin everything on it, I certainly do, but sometimes it's something else.

 

Let us know what the doctor says about it.

 

Have you had scleroderma long? I'm into my 3rd year.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Katie

 

I have the limited form and suffer with Raynaud's which not only affects my hands but my feet has well. My toes do turn dark purple and feel very numb at times so have to make sure I keep my feet very warm. I take Liquid Prozac for the Raynaud's which has helped to cut down on the length of attacks. I wear flipflops in the shower to protect my feet from the cold tiles and also wear sheepskin boots has slippers during the winter.

 

Buttons

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Hi Katie,

 

Welcome to the Forum! I hope you'll post often and let us get to know you. We're a pretty friendly bunch here and definitely understanding!

 

I have numbness and tingling in both my hands and feet and have had since before my scleroderma diagnosis. It seems to be slowly getting worse as time goes on and the consensus seems to be that it is some peripheral nerve damage due to the scleroderma. Raynaud's seems to make it more noticeable, that's for sure. But, as the others have said, since so many other things can cause it, it's important to get those ruled out.

 

Buttons, what a wonderful idea wearing flip flops in the shower is! Thanks a zillion for that one!:thank-you:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Katie, have you scheduled an appointment to see your doctor about this, yet? I'm thinking about you, and hoping they find what's causing it soon.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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