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Jeannie McClelland

The Spoon Theory (for our New Members)

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This is a great way to explain to someone what it is like to live with a chronic illness. Sheryl, one of our great Support Specialists and Chat Moderators, asked if we would post it again so here it is, The Spoon Theory! As an 'Oldie' (4 years and counting) I find it helpful to revisit it from time to time to remind myself that goals are wonderful, but we shouldn't make unrealistic demands on ourselves.

 

Warm hugs and best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Jeannie,

 

I'm so glad you have put this on the board. I read it quite often. I was attacked coming back from shopping on my mobility scooter by waiting for it 2 elderly people. I asked if I could pass them. They moved aside and as I got level with them the lady accused me of going too fast. I said I wasn't so she said, well how have you managed to pass us? I said well you have stepped aside to allow me to.

 

With that they jumped in front of me so I couldn't get past. I was shocked and said you silly thing, and with that the man turned round and stated shaking my buggy. So I got out. Oh, he said, and you're disabled?

 

I was so upset as I do not always look ill. I kept thinking, if only you knew! However I did phone the police as I was very shook up but there was nothing they could do. No witnesses and I never knew where they lived. But the police said what would I have done if we knew where they lived? I said I would have them charged with intent to harm me. I feared the buggy would go over but alas that never happened. I often wish I had I sticker saying butidontlooksick! :D

 

Lynn

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Hi Lynn,

 

You have to watch out for us OAP's (Old Age Pensioners!) because we can be dangerous! :excl: All joking aside, that was a nasty experience and I'm glad you weren't hurt.

 

I have a handicapped placard for my car, but when on a shopping run am usually too crazed by the thought of missing potential bargains to put it on the rear view mirror. I had someone challenge me once when I pulled into the parking space, because I bounced out of the car like the Bargain Hunter herself. Once I had dragged my O2 backpack out from where I had it secured and put it on, all criticism stopped, but I sure didn't get an apology!

 

Ah well, as we all well know, there's naught so strange as folks.

 

Warm hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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"But you don't look sick"...if only I had a dollar for every time I've heard that one! It's amazing how many people form assumptions based on looks alone. Of course this happens outside the realm of illness too and I have been guilty as well, but becoming a Sclerodermian has changed my outlook on a lot of things. We can only try to stay positive and use these instances as an educational opportunity.


I may have Scleroderma, but Scleroderma doesn't have me!

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