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LisaBulman

(Update) Amanda: Diffuse Systemic Sclerosis

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(Update) Amanda: Diffuse Systemic Sclerosis Now I continue my scleroderma journey having collected myocardial fibrosis, heart failure and post capillary pulmonary hypertension to add to gastrointestinal issues, mobility issues, skin involvement, joint contractures, sclerodactyly, chronic pain and fatigue...

 

There are over 1,000 patient and caregiver storieson the main Sclero.org site. Over 300 of these stories are featured in the Voices of Sclerodermabook series. Submit your story here.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Amanda, darling, you have a lot more to whine about than most of us yet you still manage to do it in such a clever, often tongue-in-cheek, charming manner. But remember, you DO have something to whine about, whether you chose to exercise that option or not on any given day.

 

Don't you think we should all get an award, every single day, just for getting out of bed (if indeed, we do) and for doing anything else besides that (if indeed, we do)?!

 

Here's an award for you, Amanda, and for all our fellow Sclerodermians. It's engraved, "You truly wouldn't believe what it is I'm not whining about right now!" Sclero Award 2010.

 

:emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Awww...you guys!!:thank-you:

 

The Sclero 2010 award for perseverance, determination, ingenuity, humour and courage goes to...every sclerodermian everywhere! :flowers:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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:emoticon-bang-head: I am such an idiot!

 

I jUST realized that the Amanda in the link was "our" Amanda and when I first read this post I couldn't believe the moderators would allow someone to post "what a whiner!!!" :emoticon-bang-head:

 

miocean


ISN Artist

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Amanda, having read your story throughly, I can only say that it makes me feel humble at the amount of courage you have shown. :flowers:

 

May I hope to bear everything that comes my way with the same amount of fortitude! :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Miocean you are hilarious!:lol: No one does humour like a sclerodermian! :lol:

 

Jo fortitude comes with scleroderma, it's a package deal, we all have it in abundance!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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