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scampie5

Dry Nose, Causing Nose Bleeds

16 posts in this topic

Hi,

 

The inside of my nose gets very dry. Can any one recommend some thing I can use to help keep it moist? I have to be careful otherwise I get nose bleeds.

 

Many thanks,

 

Lynn

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Hi Lynn,

 

I use a nasal gel and also a mist spray. I like the gel the best. I use a q-tip to apply the gel.

 

Purr


Love makes the world go around!

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Hi Lyndylou

 

I suffer with this problem and have been using a saline nasal spray for about 3 years now and it does help. It has been advertised on TV recently here in the UK. It was recommended by a consultant immunologist that I was seeing. He did explain how it should be used and I have to say I always feel better when I've used it.

 

Buttons

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That is a problem for me also. I use plain petroleum jelly and apply it with a q-tip.

Betty

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Hi Lynn,

 

From our page on Pulmonary Fibrosis: Preventative Care comes this:

 

"Never use Vaseline to moisturize the inside of your nose. Its an oil-based product and may be inhaled into your lungs and thus cause problems. Always use a water-based moisturizing product, such as Ayr Saline Nasal Gel."

 

The same would apply to any petroleum jelly product. I've recently bought Ayr, but haven't tried it yet. I'll let you know what I think of it tomorrow.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Jeanne,

 

Ayrs is exactly what I recommended to her in a PM. Thought we couldn't use product names?

 

Purr


Love makes the world go around!

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Hi Purr,

 

You're right in that we do put quite a lid on brand names, to prevent sales people from overtaking our forums. However, there is one loop hole, which is that we can mention brand names here which somehow managed to be mentioned on the main site. After all, there are some instances where brand names are helpful (especially when there are just a few suitable brands in an area), and this happens to be one of them.

 

So kudos on you for nicely going through the PM loops; that certainly is easiest unless you know how to do all the fancy searching of our main site, like Jeannie does. We specially mention it in this case, because it is not vaseline-based.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Would you believe Ayr was the only brand available here?! You'd think there'd be more of that kind of thing in places where the humidity is down in the single digits in the winter~

 

So, carrying on the subject of noses, any ideas what I could do to keep the air from the CPAP from setting off a painful attack of Raynaud's of the nose? There is a warmer for the water in the little built-in humidifier, but it doesn't do enough. Also, it's not enough moisture, hence the saline gel.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I have the same problem and have found the nasal saline rinses help. Even though they are over in a hurry, the relief seems to last awhile for me.

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OK, I said I would let you know how the saline gel worked for me. One word - great! A little goes a long way, lasts a long time, feels nice (not as gross as I thought it would be), and has the faintest trace of a scent. Couldn't tell you what it smells like, just that it was very unobtrusive and pleasant.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Jeannie, I used very, very warm water in my C-pap machine. I had an extra water container and when I would get up in the middle of the night I would add real warm water to that and make a quick switch. The warmer seemed to keep the water at the same temperature as the water that I had put into the container. If I have to go back on it again I would continue with adding the very warm water. It worked great for me.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Thanks, Sheryl, I'll try that! I'm still only managing about 3 hours maximum on the thing because of the coldness of the air~


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Jeannie another thing that did help me in the colder months was to have a small portable heater near my bed. It would keep the air in the room warmer than the rest of the house in the winter months. I would turn it on about an hour before bedtime. Having the warmer air in the room my face and nose didn't stay chilled or cold. Using the C-pap was less chilling to the face. Three hours of extra amounts of air flowing through and around your body via your lungs, and giving a better supply of oxygen for better brain function is better than zero hours. Plus, you feel a bit more energy when waking up. At least I always did. I was thinking about buying a nose warmer at one time as the excess air coming out always blew on me and made my nose cold. My husband was the biggest complainer of the excess air or our exhaled air blowing on him. He would have to always sleep turned away from me. Well, his snoring was softer anyways so it didn't bother me.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Jeannie,

 

My husband Gene, who is a CPAP user, said, 'Her machine is broken!' He's never had a problem with the water in his CPAP staying nice and warm all the time. Maybe your machine isn't broken, but rather you might need a different unit that maintains a more stable temperature. It would probably be worthwhile to contact your CPAP provider, and ask them about this issue.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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