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Phoenix visit by Dr Burt

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My wife had a stem cell transplant for systemic scleroderma 2 years ago at the Northwestern under the care of Dr. Burt. She is back to work as a RN and life is good again for us. She is off all her immunosuppressants and her pulmonary artery pressures are now normal off those meds. Dr. Burt, who treated my wife, is giving a lecture to medical staff in the day but in the evening is giving a talk about his treatment for scleroderma to the public at 6 30pm at Squaw Peak Pointe Hilton on 16th st if anyone in Phoenix is interested let me know and I can reserve you a spot.

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Thanks for the information, Scrag. And congratulations to your wife and her medical team for her good results from the stem cell transplant.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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What a great result! I'm very happy for you and your wife. :happy-day:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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At the talk in Phoenix there will be a number of people who have undergone the stem cell transplant at the Northwestern for Scleroderma and other autoimmune diseases. They will be able to discuss their treatment with people who come along. You can send me a PM for more information.

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Just a reminder that there are still a few places available for Friday's talk by Dr Burt in Phoenix.

 

If anyone is interested please PM and let me know.

 

Thanks Craig.

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We had a great turn out for the evening presentation. Over 125 people came to the venue, there was over 20 with scleroderma 2 of them have had non myeloblative stem cell transplants over 2 years ago and none are on any immunosuppressant or steroids. They got to talk about there treatment and how marvelous it is to have their lives back. With Dr Burt’s Assist trial you no longer have to do a control arm with cyclophosphamide like the SCOT trial you always get the stem cell transplant. It is the only treatment that treats the cause of scleroderma the faulty immune system and not just symptom management. Centers all over the world are performing the non myeloblative stem cell transplant as it has been proven to be tailor made for autoimmune disease and not a cancer treatment. Dr Burt and the Northwestern saved my wife's life.

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