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Nia

From: Do I move to Queensland?

26 posts in this topic

Hi Nia

 

I was diagnosed in '85 with systemic scleroderma and was living in Adelaide. The cold weather was stopping me from doing so much and after having half a finger removed due to the condition, I decided to move to Darwin.

 

I had just endured 8 months of excruciating pain, 8 panadeine forte and 4 sleeping tablets a day and was missing out on enjoying my children grow. I had nothing to lose and found that I was still mobile enough that I could play netball 4-5 times a week in the warmer climate.

 

During the 10 years I was there I had endoscopies every 6-12 months as I have chronic esophagitis, but life was much better. My digits rarely suffered infections and I wasn't held back from doing what I wanted. I now live in Paradise (Sunshine Coast) in Queensland. I have a great general practitioner who looks out for me and updates my Health Plan every 6 months. He also assists me in receiving free additional medical and dental care. My gastroenterologist has me in for an endoscopy every year and although it is chronic I am controlling it with medication.

 

The winters here are bearable and personally the move from the freezing Adelaide winters has made my life so much more enjoyable. Although I am not in total control of my scleroderma, through diet, a great network of family & friends and making the "sea change" I don't dwell on my condition and just look forward to completing my 'bucket list'.

 

Onwards and upwards with gusto!

Kaz

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Hello Kaz,

 

Welcome to our forum, so pleased that you were able to give some positive advice to Nia.

 

Glad to hear that you are getting good treatment in Queensland. It's great that you have a good general practitioner, they do make such a difference.

 

Hope to hear from you again.

 

:emoticons-group-hug:

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Hi Kaz,

 

Welcome to these helpful and informative forums!

 

I'm pleased to hear that you've managed to get your Sclero symptoms under control and I do admire your very positive attitude, which really does go a long way when coping with a chronic illness. It's also such a bonus to have a first rate medical team behind you; as Robyn has said, it makes all the difference. :yes: We have a link here to Gastrointestinal Involvement which I hope you'll find interesting.

 

It sounds as if the climate where you are now living has certainly helped you; how lovely! I live in the UK where a lot of the time (particularly this time of the year) it's cold and wet.....with the emphasis on wet! :(

 

Do please keep posting and let us get to know you. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Kaz,

 

I'm just popping in to welcome you to the Forums. It's always nice to have a new member join us and I hope you'll make lots of friends here at sclero.org. Would you perhaps want to post a message in the Main Forum to let everyone know you are here and to welcome you?

 

It sounds like your decision to move was a really good one. It's sometimes difficult to up stakes and move far enough to have the benefits of a better climate. We moved from the UK to the northeast of the USA (cold and wet to cold and buried under snow or sweating in heat and high humidity) and then to the Rocky Mountains which I'd also call paradise. It's very dry and even though it does get cold, we at least see sunshine often enough to know what that bright light in the sky is! :lol:

 

I hope you'll post often and let us get to know you.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Kaz

 

Welcome to the forums! I'm in the UK like Jo and it's turned cold and wet again :angry: Oh well!

 

Good to hear from someone who has lived so long with scleroderma, gives us all hope! :great:

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I am interested to see someone asking this question of relocating because of Reynards. I will tell you something of my experiences of dealing with this problem.

I was diagnosed with Scleroderma 25 years ago. I was very very ill for the first few years and one day in late 1988 I decided if I was going to die, it wasn't going to be in my bed in Melbourne. I didn't quite know how I was going to do it, but I booked an airline ticket to London, rang my aunt and asked if I could stay with her for 6 weeks. I arranged a wheelchair at both ends, with oxygen and a medical clearance and I went. It was autumn in London and it was as though a miracle had been performed. I felt well and was active. People there thought the stories of my expected death were premature. I can't tell you why this happened.

 

I decided then and there that what ever it was in the change of climate I would repeat it as often as I could. Since then I have rarely spent a winter in Melbourne. My ulcers only start to reappear if I end up here in winter as I did last year. My general health seems much better although this doesn't stop the slow progression of various symptoms.

 

Interestingly I find that I survive winter in London better than I do in Melbourne. I think it is something to do with the type of heating (hydronic?), and the fact that everything is well heated including all transport. I find the sudden changes of temperature in Melbourne winter and summer the most difficult to deal with.

 

15 years ago my husband left and I was forced to face difficult circumstances. I rented out my house to pay a big mortgage I had to take on, went to London to live for half the year (the warmish bit), was able to find work at 50 years of age. I took work on 3 month contracts so I could back out if my health was cracking up, as it did a number of times. I house sat and was able to save enough to live for the other half the year in Australia. I gave up having a home for 8 years, but the Reynards certainly wasn't a problem. I concentrated on making friends, doing my new job and generally keeping my mind of the disease.

 

I am now retired, but as with so many of us, with insufficient money to live on. I still try to get to London for part of each year, continuing to house sit for accomodation. I have thought of going to Queensland but I don't like the humidity, don't know how I would make a life for myself either.

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Hello there Bendofisland

 

Welcome to our forum and thank you for your very interesting post regarding they way you have dealt with the changing weather of Melbourne.

 

You certainly have a long trip to London but sounds great. You certainly took a risk and it has paid off.

 

I agree that moving to a humid climate is not an answer to Raynaud's and ulcers.

 

Nia is my daughter and lives with me here in Melbourne. Of course the fact that being able to scratch a living by working is a bonus.

 

You are an inspiration to others and hope to hear from you again.

 

:emoticons-group-hug:

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Hi Bendofislands,

 

Welcome to these forums!

 

Firstly, congratulations for dealing with Scleroderma for the last 25 years; I'm a comparative newcomer having only been diagnosed for the last 20 months.

 

It sounds as though you have found a way to deal with Raynaud's and the ulcers quite successfully and although I certainly couldn't recommend the English climate having lived in the UK all my life, I can see that it has obviously helped you a lot, as has your very positive attitude.

 

I'm very much looking forward to reading more of your posts.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Benofisland

 

Welcome to the forums! I think what you did was amazing as is having lived so long with scleroderma. You've obviously had obstacles along the way and yet you have overcome them and no doubt will continue to do so.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi

 

As a pommy with a lot of problems that go with Raynauds I was 15 when diagnosed but 50ish at this time - I can cope with colder climes but when it comes to air conditioning it is a killer. I have found air conditioning and Raynauds is not a good mix!

 

Extra layers are good but we all know you need to keep out of the drafts and keep warm. The Canaries Isles are my warmer climes, when I have the holidays, funds permitting, and the benefits have been worth every penny.

 

Heat every time for me and everything gets and feels better.

 

Gil

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Hi Gil,

 

Welcome to the ISN forum. It is certainly a good place to find information and also to give tips to others about the best way you find of dealing with so many symptoms.

 

I know what you mean about air-conditioning. It is not only cold, but feels like a chemical cold!!! It blasts either right down your neck, or onto your feet and getting goods out of the freezer department in shopping centres can be a nightmare.

 

Thanks for your advice and hope to hear from you more.

 

:emoticons-group-hug:

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