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Amanda Thorpe

Pressure sore...I'm too young surely!

26 posts in this topic

Hello Penelope

 

Welcome to the forums! My sympathies with the ulcers! I have mine dressed twice a week by the district nurses and like yourself can't get them wet which makes washing interesting and yes...my feet smell! I'd like to pretend they don't but they do, they sweat from the bandages and slippers, well I have to keep warm don't I? I figure that in the weird 'n' wacky world of scleroderma there are worse things than smelly feet! :lol:

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Penelope,

 

Welcome to the Forums!

 

I'm fortunate - no ulcers on my extremities. I'm going to try something I learned from Shelley that might just help you all.:fairy::fairy: There you go, a double wave of the magic wand! Joking aside, I wish I did have a magic wand to wave and make it 'all better'.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hey friends - you are all so awesome. I find so many posts I want to respond to - so much in common. Well, the pressure bandages are doing the trick - I blew the doctor away with the improvement - due in most to an outstanding support system that keeps me off my feet! I'm hoping to be totally healed in two weeks - optimism has been taken by this disorder! Happy Valentines Day to you all!

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Hi Amanda,

 

I just found this forum today on the net, after searching for more info on my Ankle Pressure Sore problem. irst the history, I had surgery to remove a growth on the ankle bone in 2002. So a scar right across the ankle bone (right). Next, a "small" pressure sore on the cut line in 2006, didn't really clue in then to how bad these can be, as it healed up in a few weeks. Currently on Dec 29th the deep hole formed on my ankle bone, and began to discharge yellow fluid. The hole was about 3/16" wide, with red around the edge.

 

This was all caused by skiing, and skiing hard for many consecutive days. My boots fit reasonably well, as I had custom work done, and custom orthotics. But I should have had more of a punch done on this ankle, or stopped before it got to this stage.

 

Anyways, now the process, the doctors were alarmed at the condition of this pressure sore, and were concerned about potential bone infection. I have been on 2 sets of anti-biotics. I have had xrays, then a bone scan, a CT scan coming in Feb and a ultrasound coming in March. Results look good though, no bone infection so far. I have seen a plastic surgeon twice, who assured me it will heal, but thinks I should talk to an orthopedic surgeon to address the ankle bone that sticks out more than the left side. He says he could do a "flap" - skin graph type surgery, but is hessitant in case it doesn't work/take and he causes more problems. Wants to wait a month and then re-asess.

 

I have the pain you have. Yesterday we noticed that the hole is a fair bit smaller, this is after debriding again last week, and trying a different bandage. I am now seeing the same nurse and doctor each time so they know the sore really well. Put on a soft "donut", small about of Bactroban and gauze, taped up by Hypofix tape. Doctor today said he is happy with the progress!

 

But this is after 6 weeks. I have kept it dry, kept pressure off, and have exercised still, but not quite as intense as usual. Very stressfull, when not much progress happening. All I can say, is that hopefully this heals up soon and do not take these lightly! Go see a doctor and stay on top of it until you get answers and progress.

good luck,

 

Jon

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Hi Jon,

 

Just popping in to welcome you to the Forum! I hope your pressure sore heals up soon and gives no more trouble.

 

Best of luck to you,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thank you.

Been doing a lot of computer work lately (sitting), crossing up legs etc. Getting sore around the ankle, need to get moving more and get the blood flowing.

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Hi Jon,

 

Welcome to these forums!

 

I'm sorry to hear you've been having such a horrible time with your pressure sores; they sound really painful and I do hope they heal up very soon.

 

I'm looking forward to reading your posts and hearing how you're faring.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Jon

 

Welcome to the forums! My goodness that sounds quite an ordeal. You are right that we have to pay proper attention to these things because they can easily get out of control. I now have another ulcer on the outside of my left foot but this is a baby one and I intend to ensure it stays that way, it's dressed twice a week along with the large one on my right foot.

 

Please let us know how you get on and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

A nurse at the cosmetic Doctors' office suggested a gel which I could possibly use as an alternative to debriding by hand.

Might ask when I go in to get my bandage changed.

 

Good luck everyone and keep on it!!

Jon

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