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Tawanda70

It's been a long while since I was here...

28 posts in this topic

Hello Tawanda

 

When first diagnosed all I wanted to do was clap eyes on another person with scleroderma. I am pleased to say I do so regularly because I host a local group for the UK Scleroderma Society and have made friends with many of those who come.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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International Scleroderma Network (ISN)

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For what it's worth, my Scleroderma specialist in Baltimore and my gastro intestinal doctor in Virginia, without contact, have both said no to surgery for me.

 

They thought it would make things worse....

 

alice

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Alice, does your esophageal manometry results prevent your surgery? I still have enough function to allow for the surgery. Now, if that goes one day for me, it will be dealt with then :huh:

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