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summer

Jaw pain

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Hello everyone, I haven't posted here for some time, but do check in and read posts on a daily basis.

 

For the last couple of weeks, I have been waking up in the morning, with cracked lips, on the sides of the mouth. I do put lanolin on my lips every night, especially the corner areas, but it still doesn't stop them from cracking. I have also noticed that my mouth is getting much smaller these days.

 

This morning I woke up to a stiff jaw, on one side of the face, near the ear. It doesn't hurt if I open my mouth, but does hurt, when I close my mouth, or clench my teeth. It is a weird feeling.

 

I am wondering whether anyone else has experience this. By the way, I have Limited//crest scleroderma, and was diagnosed in 2007.

 

Thanking you all in advance :thank-you:

 

Summer

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Hi Summer,

 

I have something similar as far as the jaw stiffness/pain goes. It's been variously described as being caused by inflammation of the temporal-mandibular joint (TMJ), a problem with the salivary glands on that side, clenching my jaw while I sleep, and a crown that needed replacing. Oh yes, and some kind of 'reflected' ear problem. :blink: And yes, I still have it despite having replaced the crown and gotten a bite guard. Your best bet would probably be to see your dentist.

 

Now the cracked corners of the mouth could be a whole other problem. I'm no doctor, in fact I even have difficulty giving my dogs pills, but . . . there are an awful lot of people who are allergic to or have a sensitivity to lanolin. You could always switch to a petroleum jelly or beeswax based product and see if it makes a difference.

 

Warm hugs and happy New Year,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Summer

 

Sorry to hear that you've had sore lips and stiff jaws.

 

I've never actually had a stiffening in my jaws, so to speak, although I do tend to clamp my jaws together sometimes, particularly if I'm concentrating hard. My friend's husband, however, had a similar problem to Jeannie and after much to-ing and fro-ing from dentist to doctor found out that, like Jeannie, it was to do with clenching his teeth whilst sleeping. He also uses a bite guard which I think has helped a bit.

 

I therefore think that probably your next port of call would be your dentist to see if he/she can suggest something to alleviate the discomfort; he might also be able to suggest a suitable cream to help with your cracked lips.

 

Do let us know how you get on.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Summer.

 

I also get jaw pain; it comes and goes. The corner of my lips are often sore and my lips and my mouth have got smaller. I have lines above the top lip and I do mouth exercises to help so my mouth doesn't get too stiff.

 

I use antiseptic cream to heal the split corners of my mouth which works very well.

 

Lynn.

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Hello Summer

 

I don't get jaw pain but my lips do split in the corners for no reason. I use a thick cream for mouth ulcers at night and find that after about 2 applications the cracks heal up again.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi..

 

I've been experiencing jaw pain too. My jaw gets stiff and locks in place. Been happening for the past few months. Hurts to open too. I've been told I might have Temporomandibular Joint Syndrome, and need to see a dentist. Might be an option for you too.

 

The cracks on the corners of your mouth is something called cheilitis. It's a dermatologic condition. I'm not sure if it's related to scleroderma, but having worked in dermatology for 10 years, I definitely know that's what it's called. You should consult with a dermatologist in your area, you may need a little stronger of a cream to help. And yes, a lot of people are allergic to lanolin. Try a petroleum jelly based product a few times a day until you can see a dermatologist. The key is to keep it moist. Just don't lick it (and I know that can be hard).

 

~ J

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Thanks for all of the replies; sorry it has taken some time to answer.

 

The good news is, that I only had the jaw pain stiffness for 3 days, now it has disappeared. My cracked lips have also healed.

 

How do our mouths get smaller, with scleroderma? Does it shrink inside or outside or both?

 

Many thanks

Summer :emoticon-hug:

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Hi Summer

 

I'm very pleased to hear that your jaw pain and cracked lips have improved; what a relief for you! :)

 

Scleroderma can cause the skin to harden and shrink around the mouth and lips making the mouth smaller and tighter. We have a LINK to MISCROSTOMIA HERE which I hope you'll find helpful.

 

I do hope that your jaw pain and cracked lips don't recur again.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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hi summer,

 

I too suffer from a stiff jaw that also dislocates and gets stuck and is very painful. I was referred to the dental hospital and was fitted with a mouth shield as I bite my jaw together whilst asleep and sometimes it happens when I'm awake. I have several chipped teeth now as a result as when it clamps down I have to wait for it to release. The gum shield has helped with the protection of my teeth but not much on the pain and stiffness side of it. I was wondering do you get pain in your eye socket when the jaw becomes sore as I have been for a while now.

take care of yourself.

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Hi,

 

I, too, get jaw pain every couple of months; it lasts for a couple of weeks and then goes for a while.

 

I went to my general practitioner who asked me if I scuba dived !! Well, when I stopped laughing I told her no, bearing in mind that she knows I can't walk far and am in excruciating pain all day. Well, she said, it was quite common in people who scuba dive and that the pain would ease, so feeling very frustrated I left.

 

I think I've given up with my general practitioner; she's hopeless.

 

Regards

 

winnie97

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Hi Winnie,

 

Scuba diving?! And you didn't think to tell her no, but you were just about to go off the deep end now? :blink:

 

Are you shopping for a new doctor, as we speak? Meanwhile, you can always try an ENT (ears-nose-throat) doctor for a bit of a more in-depth assessment.

 

Ack! I think I spoke too soon, before my brain woke up. My TMJ was handled by my dentist, who referred me to a TMJ clinic, and I'm not sure exactly what their 'specialty' is called, or if ENTs handle the jaw, or not.

 

:emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I also have CREST/Systemic SD and experienced TMJ pain. Back in 2002 I saw a TMJ specialist who treated me with injections. The pain was getting worse, so he sent me to an oral surgeon. It was the oral surgeon who diagnosed my problem. He said from the SD it caused arthritis in the TMJ. I had an MRI taken and it showed that the top 1/4 of the joint eroded away, as well as the cartilage (whole disc). I needed to have 2 extensive surgeries to correct the problem - including breaking my lower jaw and wiring my mouth shut for 5 weeks. The two surgeries were 7 months apart from one another and were VERY successful. I only get jaw pain when I'm stressed.

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