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mollie

Ear Problems with Scleroderma and Sjogrens

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Just checking in to see if anyone has experienced ear related problems. On Thanksgiving, my ear drum ruptured almost for no reason. I felt a little pressure on my left side (that's the side I have the most problems with Sjogrens) and my ear started bleeding. Called my ENT doctor and was put on antibiotics as well as antibiotics/steroids for my ear...still under doctor's care and my ear is finally getting back to normal. I have also had hearing loss over the past few years and now have to wear hearing devices (again my left ear has been affected more than my right ear). Just wondering if anyone has experienced similar problems. Thanks much.

 

Mollie

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Hi Mollie,

 

Here's a link to Autoimmune Ear Disease.

 

I have some hearing difficulties and I know several others have mentioned the problem too. Well, I suppose if I were being really honest, it's gotten to the point of being more than just "some." If you add in tinnitus (ringing in the ears) to the hearing loss (grump, why couldn't those miserable little silver bells have gone?), there are times when I feel like I'm moving through a sort of fog of noise. Very annoying, to say the least!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Mollie

 

Count me in on ear problems, I have tinnitus and have had since I was a child. In fact I thought ringing in the ears was normal and didn't even know tinnitus existed until about 20 years ago! :lol: Last night I asked my husband if he could hear that dinging sound, like the dishwasher makes when the cycles finished and of course he couldn't because it was the tinnitus. I am so used to it now I couldn't sleep without it.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Mollie

 

Sorry to hear about your ear problems.

 

Thankfully I don't suffer with hearing problems (although I have been known to have selective deafness on occasions.....ask my long suffering husband! ;) :lol: ) However, like Amanda, my husband does have tinnitus and suffers with deafness in one ear so I can understand how horrible it must be for you.

 

I do hope the anti-biotics and steroids are able to offer you some relief and that the inflammation will soon be under control.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Thank you...I very much appreciate everyone's responses.

 

I too, have been accused of selective hearing...made me laugh when I saw your post.

 

Thank you all again...will just keep plugging along.

 

Mollie

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