Sign in to follow this  
Followers 0
Jeannie McClelland

Disability in Systemic Sclerosis (SSc) - A Longitudinal Observational Study.

2 posts in this topic

Disability in Systemic Sclerosis (SSc) - A Longitudinal Observational Study. Our study provides strong evidence that SSc causes increased disability over time, with breathing problems and disease type being the strongest predictors of disability. Statistical modeling accounting for informative patient dropout is necessary to properly assess the outcomes of patients followed longitudinally. Mireille Schnitzer, Journal of Rheumatology, December 15, 2010. (Also see: Prognosis and Disability)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hi,

Long-term disability is a major factor due to the present management being on relieving symptoms rather than treating the condition. New therapies are coming out all the time and the treatments are getting better. A lot of these chronic disorders are now more effectively treated and the management is improving year on year. Patients are seeing improvement, my wife being one and she is hiking mountains where she couldn`t climb stairs two years ago. My wife got better and she tells me all the time how she didn`t know how bad she was until she improved. Why should disability be the final outcome when there are tough ladies on this website battling everyday?

Thanks Craig

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0