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JaneLesley

Lost for Words

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Hello Jean

 

Should the pain suddenly become acute make sure you phone the doctor just in case, don't sit around because you have a pending appointment.

 

We look forward to hearing how the appointment goes.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Jean, if you're anything like me, by the time the appointment finally rolls around, your body will be working on some other plan of attack, and you'll have completely forgotten about this skirmish!

 

I hope all goes well, until then, and with any luck, that it clears up with the mere passage of time. I find that nearly everything goes away on its own within six weeks. Well, maybe not goes away but rather moves on to some other body part that it finds more entertaining, at the moment. It doesn't mean that it wasn't an issue, but only that the immune system finally kicked in (or out, as the case may be) and got things under control, finally, or at least that it is holding its own for the time being. Please keep in mind that it's important to keep the appointment with the specialist, even if things appear to clear up in the meantime, since it does not necessarily mean that the issue is completely resolved.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Everybody,

 

Just reading this list of posts makes me think back over my life with Sclero (and I am lucky too because right now my symptoms are pretty quiet) and remember some of the kind, unkind and daft things that I have had to listen to.

 

There was a time before I had a diagnosis and our kids were in their teens - and lots of you know what that means!! - that I used to say my life was rushing on ahead and I was forever running along behind trying to keep up. If it is any consolation to you, things are better now. Our children are now adults with children and pets of their own to care for (I notice neither of them have white mice - I wonder why!!) And I am forever hearing how sorry they are for whatever it was they did all those years ago.

 

My health (or lack of it) now makes sense to me and I can mostly relax about it - fortunately nothing dire has happened in spite of my fears and I have a general practitioner who just says tell me everything that happens and I will note it down in case one day it is significant. She doesn't laugh at me or belittle anything (if she did I would have moved on years ago) and I come away feeling better about things for having been able to talk about it.

I hope you can try to relax and go with the flow, but don't ever forget to put your own well-being first. A bit like the instruction on an aircraft - put your own oxygen mask on first and that will leave you free to help others.

 

 

Warm and humid hugs from the hothouse of the South Pacific (this week anyway)

 

Judyt

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Hi Jane And a warm welcome from me too :happy-day:

 

All I can say is "lucky"..... I'm so cross. :angry:

 

Am afraid if I saw the "person" who spoke to you so insensitively, i would say, "well if am so lucky would you like to swap places with me, live my life for a month or so and THEN tell me am lucky!!!" :angry:

 

But, you ARE lucky because there's a big sclero support family on here that are there when we need each other and understand acutely what happens, how we feel, and help when ever its asked for! :emoticons-yes:

 

Hoping you will continue to post and talk with us other "lucky" people! :emoticons-yes:

Hugs :emoticon-hug:

Lynn

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Hello Tina

 

Marvellous that the medication has helped your symptoms! :emoticons-line-dance:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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