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Radio Star

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Well! After a morning of doubt I did eventually hit the airwaves in Lancashire.

I was a bit nervous, well who wouldn't be but all went well so I'm told as I haven't yet heard the interview myself.

All was going a bit pearshaped this morning when the DJ phoned in sick leaving a stand in to do the interview. I wondered if it was all going ahead at one point and then a telephone call confirmed my appointment as scheduled.

I arrived at the station at about 10.30 and was greeted by a locked and fortress sealed door. My hands were in spasm because of A -- the cold and B, the banging I had to do to gain entry. Finally someone came and I was allowed in.

I talked about Raynauds but emphasised the two different types -- I didn't want people thinking that if they have Raynauds they might have scleroderma as well!

I tread very carefully but got the point over.


I'll write a blog on my day at the station and as a Radio Star -- not really!


Best wishes to you all and thank you for the support you gave me. Believe me folks you made it so easy for me!



Barbs xxx

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Congratulations and Thanks! We all know you were great!

Having to stand in the cold, I bet you were able to show the interviewer first hand what Raynaud's looked like.


Big Hugs, Janey

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Barbs,


Congrats! I am very glad that you helped raise awareness of Raynaud's with the radio interview in the U.K. I'm willing to bet you gave great information, and I'd be surprised if you were not an absolute stitch.


I was finally able to meet Anne Mawdsley in San Diego in 1998. She was at our first Scleroderma Webmaster's Association Meeting, along with her friend Ann Phelps, who runs the Irish association. She's very special!


Kudos on raising awareness of Raynaud's!

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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I've asked the radio station for a copy and they promised to put it in MP3 format. Now I'm no computer boff but I think there may be a way of putting it into a media file. If this is so then I'll try and make it available for anyone to download it.

Thanks to you all for your responses. Hope I did a good job in the end


Best wishes

Barbs xxx

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