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SaraM

New Medicine for Raynaud's - and Health Insurance Covered It!

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Hello, all! I haven't written in awhile.

 

I have been having a really hard time this winter with my limited sclero because of my Raynaud's. I recently went to a specialist (a sclero clinic at Johns Hopkins) and they started me on 20 mg of Revatio (a PDE 5 inhibitor, like Viagra). It actually is seeming to help take the edge off of the attacks. I am just waiting to see if it will help my ulcerations heal.

 

Just thought I would share the information in case anyone else is suffering this winter with Raynaud's.

 

Sara

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Hi Sara,

 

That's really good news that you've found a med to improve your Raynaud's. It's very satisfying to find something that does work and improves the quality of your life. We've got a couple of useful links HERE and HERE about Raynaud's and Revatio which I hope you'll find interesting.

 

Thanks for letting us know :thank-you: and I do hope the Revatio continues to help your Raynaud's.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Revatio is the drug sildenifil, exactly the same as Viagra. Ravatio is given in smaller doses.

 

I take it for pulmonary hypertension, But I've also noticed less trouble with Raynauds. A member of our support group has been helped with serious skin problems arising from diffuse scleroderma.

 

Nitroglycerin cream and calcium channel blockers have also been helpful for Raynauds.

 

Good luck,

 

Craig

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