Sign in to follow this  
Followers 0
nugentsanchez

Blood donation

10 posts in this topic

I have been a blood donor but have recently been diagnosed with Morphea (on my scalp only, for now). I asked the Red Cross if I should stop donating blood but they never responded. If anyone can answer my question or even suggest someplace else for me to pose this question I would appreciate it.

Share this post


Link to post
Share on other sites

Well, I was a donor too, and my hubby still does, so I went with him, and asked the people there and they told me NO. I also have lupus so it will be better to go to your neighborhood blood donor place and ask them straight out and they will tell you.

 

Hope this is good advice for you,

 

Hugs Patty.

Share this post


Link to post
Share on other sites

Hi Nugent,

 

Like Patty said, asking at your local center is the best way to determine whether you are eligible to donate blood now, or not.

 

We have a page on our main site though about Tattoos and Blood Donation which includes some general articles on blood donation as well, which you may find helpful. You'll see that people with systemic scleroderma are not allowed as blood donors; but of course, you have localized scleroderma, which is a bit different.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi Nugent,

 

Welcome to these forums!

 

I'm afraid I can't add anything to the advice that Shelley and Patty have given you and agree with them that the best idea is to ask at the blood donation centre when you next go to visit them.

 

We have a link here to Morphea Scleroderma which I hope you'll find informative.

 

Do please keep posting and let us know how you are faring.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Nugent

 

Welcome to the forums! Don't forget to take into account any medication you may be taking when you make your enquiry.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Nugent

 

I'm guessing not as well and I agree with the others, definitely best to ask again. Let us know what you discover okay.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

I was told that people with autoimmune disease should not donate blood.

Share this post


Link to post
Share on other sites

I was able to speak to a nurse at the Red Cross who looked up my condition. She said that it is OK to donate blood as long as there is no localized scleroderma at the sight where they take the blood (arm). If anyone hears of contrary advice from experts please post.

Share this post


Link to post
Share on other sites

Hi Nugent,

 

This is very good information to know, that your clinic accepts blood donations from people who have morphea scleroderma, as long as it is not in the spot where they take the blood. Thank you for checking on it, and for letting us know the outcome.

 

Just so others are aware, guidelines for accepting blood donation vary by country, state, sponsoring organization, and sometimes even by clinics. So if you have any form of scleroderma, it is very important to let your blood donation center know so they can make an enlightened decision regarding your donation status. In other words, if you have morphea, don't just assume from this one instance that it will always be okay for morphea patients to donate blood in all centers or all countries, and always let a blood donation center know your entire health history and report any relevant risk factors.

 

Thanks to all who can, and do, donate blood. Many of us are not allowed to, yet ironically we are the most likely to be in need of receiving blood, sooner or later. We appreciate your thoughtfulness in giving the gift of life!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

I'd happily donate blood. I'm an O-negative and in hot demand (hah, everybody has somebody who wants them :lol: ), but am now disqualified for three reasons:

 

I have systemic sclerosis,

I lived in both the UK and Germany during the banned time frame - due to mad cow disease, which may explain a lot~

and lastly,

I take Letairis which is a disqualifier on its own.

 

The funny thing is that during the mandatory monthly pharmacist counseling, only one pharmacist mentioned that I shouldn't donate blood. Like everyone else says, it pays to check at your donor site. But please, please do donate if you can.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites
Sign in to follow this  
Followers 0