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Tawanda70

Nissen Fundoplication for me tomorrow

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Hi Caroline,

 

I'm really pleased to hear that your operation went well and hopefully you'll continue to improve at the same rate.

 

I agree with you that perhaps friends and family could be a little more thoughtful considering you've just undergone major surgery. My husband is quite good actually; he will vacuum and lift heavy things for me if pressganged into it and is pretty useful with things like getting the tops off jars and unscrewing tight things which all seem to be thermostatically sealed these days!! I'm the one who tends not to notice mess around the place; :blush: I know what you mean by clumps of dog hair about the floor but the awful thing is that after a while we just accept it....it's a bit embarrassing when anyone comes round though! ;) :blush:

 

I know it's really difficult after years of being the one who looks after everyone else but now it's your turn to take it a bit easy, at the very least until your stomach stitches have healed! Perhaps the budding doctors amongst your friends could offer you some practical help as they're so concerned for your welfare; I know what you mean; everyone's an expert these days! :rolleyes:

 

The good news is that you're on the road to recovery; here's a :emoticons-group-hug: to keep you going!


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Caroline,

I'm so glad to hear that your surgery went well and that your symptoms have subsided! We all rejoice in that Darling! Also sounds like you have a great bunch of friends. Sorry that your happiness in feeling better has been dampened by the lack of support from your family. So once all of the food runs out that your friends brought you, I see you fixing food just for you and let the rest of the family fend for themselves. :P We are superwomen, but eventually that heavy foot needs to hit the ground and make people take notice.

 

I'm glad that you feel comfortable enough to come here and vent. We all have done it a time or two or three because we know we are talking to others who can relate better than anyone else. We're here for you Darlin!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hello Caroline,

I hope you are actually trying to look after yourself and take care - as Jeannie says your kids could do the hauling for themselves, they would have to if you go down in a heap.

 

On the other hand, you do sound a wee bit like me too, I do too much for them all too. Years ago I had stomach surgery, very similar to the stomach stapling they do to help people reduce weight, but mine was to remove a part of my stomach which had several tumours. As it turned out my surgery was done on 15 December and I came home after about 3 days with strict instructions on keeping to a semi liquid diet and no exertion etc. On the 25th December, which is a big feast day for most of us, my husband had the temerity to ask me what we were having for the festive lunch!!!! He didn't seem very impressed when I said 'anything you like to make'. From memory he rattled around in the fridge for a while and made himself something but I can't remember what.

 

It makes us angry, I know, when they act so helpless, but it won't kill them to go without for a few days until they get the message.

 

You will heal quicker if you take the doctor's advice and rest when you need to.

 

Good wishes and warm hugs from the Earthquake centre of the world at the moment.

 

Judy T

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Hi Caroline,

 

So glad your operation was a success, but reading your post made my blood boil. If friends and family know so much about the procedure you underwent then surely they also know you need after care and help until everything has healed. I think sometimes people are blinkered and choose only to hear, see and understand what they want too, as ignorance and lack of knowledge is a huge get out clause for not helping. My heart goes out to you, you must feel hugely let down and disappointed by all concerned and understandably so.

 

I live on my own, my children have all flown the nest, so I only have myself to care for on a daily basis, (which is great under the circumstances) and I dread that day should it come, when I need daily assistance. I have always been fiercely independent, which can be equally a good and bad thing and don't relish the thought of depending on others, as I am not one of these people who finds it easy to ask for help. I like to think my daughter would be able to step up to mark, but and it's a big BUT, I hope that day never happens, because I do not want to be a burden to her or anyone.

 

I have a lot of problems going on at the moment which are worsening all the time and I know it may not be too much longer before the balance is tipped and my health really takes a nose dive, but at this moment in time I am just keeping my head above the water line. If I had to be caring for a whole family right now, I know I would be struggling and thoroughly exhausted (without throwing surgery into the mix) so I do not envy what you are going through.

 

Please try to rest and take care of yourself and put your own blinkers on and ignore the mounting housework!!!

 

Sending a bunch of spoons your way,

 

Sandy B

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Thank you all so much for your encouragement! Healing has been slow, but steady. Totally amazing (and a relief!) that there is NO reflux. Still occasional nausea, but that's normal right now. Next step is to see my gastroenterologist on what do to about the 67.5 average on my acid pH. Had follow-up with the surgeon and the only small issue is adema in spleen and stomach... and of course he said that is due to me doing more than I need to right now. No biggie and this too shall pass.

 

One thing I did not expect was to get a text from a "friend" saying that I was "acting weird" and she was no longer willing to provide transportation from school for my youngest. She said also that my youngest was "somewhat rude" to her. I got this about 4 days after the "incident" and was totally floored :emoticon-bang-head: . For starters, anyone who has had surgery has to deal with the aftermath of healing, post-anesthesia tiredness and getting used to pain meds and anti-nausea meds one is not normally used to dealing with. I suppose that can change your affect. Needless to say, my short response was that I was sorry she felt my child was rude, but perhaps my child was just worried about me. However this experience has made me see who really counts in my life. I have been fortunate in so many ways, this forum, my family and doctors. That must be my focus. I have learned to "drop" the toxic friends and try and let it go.

 

I am taking things day by day and feeling better as the healing process continues. Isn't it hilarious that I cannot WAIT to use the new carpet shampooer that my hubby bought? :yes: Again, thank you all for your support and encouragement. Hope everyone is feeling well!!!

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Hey, I'm so glad you are doing well!!! I know after my surgery, It was hard to eat anything for a long time. I lost about

20 lbs. But I needed to lose the weight. But once I got back to eating normally, I gained it back...dang it. But I've learned

not to drink soda or things that have fizz or add a lot of gas..as gas was very uncomfortable, and hard to get rid of. But

the no acid reflux was so worth the surgery. Keep feeling better!! HUGS!!

susieq40 :emoticons-line-dance:

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