Peggy

Pain Sufferers - I Found Relief!

21 posts in this topic

Hi Peggy,

 

You are such a trooper! I cannot imagine how difficult this last while has been for you.

 

I truly wish you only the very best outcome with anything you must do to be as healthy

as you are possibly able.

Please know you are in my thoughts and I'm sending an abundance of :emoticon-hug: s your way.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello All

 

I just found out that my seriously ill friend in hospital died there yesterday. My condolences to her husband and family.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Peggy,

 

Once you control acid reflux, your body heals itself. Acid reflux damages esophagus as well as lungs. For lungs to be damaged any fluid, acidic or not, damages them. I went over 220 degree or partial fundoplication in 2005 and my acid reflux score DeMeester score went down from 84 to 2 (normal is around 14 and I believe highest is 96). One drawback of surgery is food can only go one way, so in case of severe stomach pain (which has happened to me once or twice a year), you cannot just vomit out. So I am very careful what and how much I eat. Out of three surgeons, two rejected me because of scleroderma, one at UCSF agreed after very extensive testing.

 

Thank you for notes on Neurostimulator. I am scheduled to go through trial part soon, but with Medtronic device.

I will keep you posted.

Thanks


Kind regards,

 

Kamlesh

 

 

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Peggy,

Please know that we are all thinking about you and wishing you the best. :flowers:

 

Kamlesh,

Good luck with the Medtronic device. :jump-for-joy:

 

Amanda,

I am sorry about your friend. :sorry:

 

To All,

Thank you for sharing the good and the bad of your experiences with scleroderma. The honesty and support found on this forum always amazes me. I don't know what I would do without you. You are the strongest people I know.

 

:emoticons-group-hug:

miocean


ISN Artist

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I am so pleased to say that I have just spoken to my dear friend wit scleroderma and on TPN, she's been in hospital again but is now home and has finally put a stone in weight on! Even better she's coming for holiday dinner in December and we can't wait to see her! :happy-dance:

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Peggy,

 

Hugs coming your way!!! So sorry for all you're going through. I had the esophagus surgery, and it was the best thing I've ever done for my digestive system. I'm hoping you're still getting some pain relief...Keep us posted.

 

Love and HUGS!!!

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