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queenie

Roll On Rheumatologist Appointment

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Hi Everyone,

hope you are feeling aswell as can be and better if possible.

 

I haven't had an appointment through yet for the rheumotologist but instead I have another name to add to my list of illnesses for the time being and yet another med. :emoticon-crying-kleenex:

I don't think I can take much more! :angry:

 

You see for the last 6 months I have been suffering with terrible lower abdominal pain bloating and some other not so nice symptoms that I'd rather not list anyway the pain got sooo bad at the weekend that I went to the emergency room as I couldn't even stand or lie down to ease the pain again I thought it may be a water infection as I've had a few abnormal results on my water works lately with blood, protein and glucose being found - what it means nobody has explained :emoticon-dont-know: however I have now been diagnosed with irritable bowel disease after some more questions and examination so hence another medication has been added to the already mile long list. i have been taking three of the new tablets a day as prescribed it has helped in some ways but the cramps just aren't going.

 

i was wondering if any fellow sufferers have had this diagnosis and what if any advice do they have to help manage the pain as life goes on and I still have to get up and about to look after my children but am really struggling with the pain. I would REALLY appreciate any tips anyone can give me.

take care

hugs and loves :emoticon-hug:

Queenie

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Hi Queenie - I suffer from lower GI issues and see a Gastroenterologist. He treats many patients with auto immune problems. Maybe seeing a Gastro doctor would help with a proper diagnosis. Just a thought. I am sorry you are in such pain. Let us know how you getting on. Gentle hugs, Ann

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Hi Queenie,

 

I also have been diagnosed with IBS, among other GI problems. I take a motility medication four times a day, am on a 7days on / 7 days off cycle of antibiotics, and have a prescription for hyocyamine to be taken for the bloating and cramping and urgency issues. That last one is an "only when bad, not routinely" thing. I've found that certain foods bother me and try to stay away from them. Mmmm, let's see. Well, for the gas I just take the dogs out to the back yard and let fly. As my grandma once said "better out and stand the shame than in and stand the pain." Walking seems to help move the gas to where I can get rid of it. Like Ann I see a gastroenterologist and he's been both helpful and informative.

 

Two things to remember: it may take a while for your new medication to get things back on track and you will also adapt, without even knowing it. I'll give you an example of that last one. Over a period of time I had unconsciously started cooking and serving softer foods and more soups and stews. That was to compensate for the increasing difficulty I was having swallowing, but I didn't realize it at the time. I think the worst thing about pain (besides the fact that it hurts!) is when you don't know what is causing it and whether it is an OK pain or something to really worry about.

 

Good luck with your rheumatology appointment. Let us know how it goes, OK?


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Queenie,

 

I got diagnosed with Diverticulitis about 10 years ago now, and I have consant problems with either diarrhea or constipation, and the cramps are horrible. I do not take anything specifically for it, but as has been said certain foods trigger it. So maybe keep an eye on what you eat from now on and notice if it causes troubles. One thing that works for me and keeps me pretty normal most of the time is to drink plenty of water, it seems to help me a lot.

 

Hope you feel better soon

 

Cheers

Jean

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Hello Queenie,

 

I have IBS too and have found that my attacks are brought on by the food I eat and stressful events(such as the surgery I had in December). Pork and beef are the main culprits. They are slow to digest. A little ham doesn't seem to bother me, but any other pork will cause a lot of pain. I don't take prescription medications for it. I take a probiotic, acidopholis, once a day. My general practitioner recommended it.

 

Hope things improve for you soon.

 

Purr :flowers:


Love makes the world go around!

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Hi Queenie,

 

Ooh, poor you; bloating and lower abdominal pain are so horrible and I really sympathise. :emoticons-i-care: I don't have the Sclero gut involvement (as far as I know! ;) ) but I do suffer with bloating and a rather full feeling after meals. Also yesterday I had dreadful wind; my husband remarked that it was a good job we neither of us smoke or there may have been a risk that I could have blown the two of us sky high!! :blush: My gut feeling (if you'll pardon the pun! ;) ) is that it's probably due to the different medications I take. I'm always very careful to make sure that I have enough fibre and if necessary take a stool softener; I realise that doesn't help with the gas problem but I really don't do constipation; I do think that is one of the worst things to suffer.

 

Perhaps when you see your rheumatologist you will be able to impress upon him the amount of pain you're suffering and he may be able to suggest some thing to help you or even refer you to a gastroenterologist. I also think Jean's tip about drinking plenty of water is a good one; the only problem with that is what goes in must come out...if you get my drift!! ;)

 

I do hope you're feeling much more comfortable soon and do let us know how your appointment with the Sclero expert goes, won't you?


Jo Frowde

ISN Assistant Webmaster

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ISN Sclero Forums Manager

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International Scleroderma Network (ISN)

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Ah, acidophilus! See Bowel Management for information on acidophilus and other probiotics (good bacteria). More varieties of live culture yogurts are appearing on the market all the time. Some probiotics are available in capsule form as well. Read the labels and also pay attention to how probiotics are to be stored and how long they remain viable after opening.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello Queenie

 

Bowel issues can be really draining. I have chronic constipation thanks to scleroderma and think that chronic diarrhea would actually be worse. Many years, prior to scleroderma, I was diagnosed with irritable bowel syndrome, which thankfully only lasted a few years, and it was misery. I remember the effect it had on my life, how I had to know where the toilet was all the time and how I had to get up early to try and make sure that by the time I left the house the cramping had finished.

 

I hope you get some relief soon.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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(Retired) ISN Sclero Forums Assistant Manager

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International Scleroderma Network (ISN)

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Hi Queenie

 

I'm on that paddy wagon too but I'm fortunate in that mine is extremely mild now and controlled with diet.

 

I was originally on medication way back when but was lucky enough to ditch it once things settled down.

 

Years ago when I was having a lot of pain (often I might add) that lasted for years as well, etc, my one doctor said I was to follow a high fibre diet which I have done faithfully ever since (don't get me wrong, I also eat plenty of junk I shouldn't eat now too :P ). I always eat 100% bran cereal, drink lots of water, have veggies and fruit daily. If you drink coffee, then double the water you drink because the coffee rules out the other water you drank that date apparently (not good). The doctor told me that rich foods like gravies will definitely irritate it. I have found that too much cheese will also irritate it for me anyway.

 

My issues have settled hugely but when I do get an episode, it's still unbelievable pain so I know what you mean for sure. Luckily I get few and very far between now...about once a year or so I get a heavy dose of painful reminder just like you get now. I feel for you. Hopefully, your medication will settle it down for you soon and you'll get better too.


Sending good wishes your way!

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