chockers

calcinosis gone to pot

31 posts in this topic

hahahahahahahaaaaaaaaaaaahhhhhhhhaaaaaaa :emoticons-line-dance: :emoticon-crying-kleenex: :yes:

 

I don't care!

 

Christine

Share this post


Link to post
Share on other sites

Update

 

I have cancelled swimming until May. I now wear a mepore dressing on the end of my finger as that's the most comfy thing to wear. I keep it on most of day, cooking I just put latex gloves on, I just pop a glove on for messiy bussness and I wash my hands with the finger out of way. Washing up and cleaning I wear rubber gloves.

 

It has changed a bit and now it looks like there's a bit more to come out, it's sore, painful to touch. It does not stop me from doing anything apart from swimming.

 

I might buy a cast to cover it and go swimming but I have child like hands so won't be supprised if they are too big?

 

I suppose I will be like this for a while?

 

Christine :happy-dance:

Share this post


Link to post
Share on other sites

Thanks for the advice. :thank-you: My finger ulcer/calcinosis is still there, even though I had been hopeful that it was on the way to healing. I too have avoided swimming until it is completely healed as I tended to use the children's pool (it's warmer) to avoid Raynauds' attacks but am afraid that the chlorine won't have killed off all the bugs/bacteria which could cause an infection. I am keeping it scrupulously clean, dry and covered, although this is easier said than done!! :fairy:

 

On 4th course of antibiotics (recommended by Royal Free Hospital) this week to see if that will have any effect but will telephone the specialist Sclero nurses for advice also. I took the online advice and gave my General Practitioner the Scleroderma Society comprehensive info leaflet - at least she won't be able to say that she knows nothing about Scleroderma when I next visit her. :unsure:

Share this post


Link to post
Share on other sites

I have a lump of calcinosis on my thumb. It's got quite sore (and yes don't you always bang it when normally you wouldnt!) I've just had to give up my nurse training because of all the handwashing, and this lump has got bigger as a result. The end of my thumb is a bit swollen, and there is a black centre and I'm not sure what this is. I had a gangrenous ulcer once in my finger, but apart from severe Raynaud's I've not had a problem since. Has anybody else had this?

Share this post


Link to post
Share on other sites

hi Inkedup,

 

Welcome to the Forums. Y'know, I think I'd get that swollen thumb looked at. The black spot in the center sounds ominous.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Hello Inkedup

 

Welcome to the forums! Please get your thumb looked at! I have foot ulcers and ignored the first one for quite awhile and it just got bigger and bigger and more painful. The moral of the story is these things won't go away on their own!

 

Yes, if you have anything painful anywhere you are required to knock it again and again and again...and again! :lol: Why is one of life's great mysteries like where do all the odd socks go? :emoticon-dont-know:

 

What's the inspiration behind your name?

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Inkedup,

 

Welcome to these forums!!

 

Ooh yes, your thumb sounds very painful and unpleasant; as Jeannie and Amanda have advised, I would definately get it looked at double quick by your doctor.

 

I do suffer with Raynaud's but thankfully have not had any Digital Ulcers or Calcinosis; I do hope I don't have that joy to come!! ;) :lol:

 

Do please keep posting and let us get to know you. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Inkedup

 

Welcome to the forums!

 

And I would guess it is tattoos behind the name Amanda :P

 

Jean

Share this post


Link to post
Share on other sites

Hi

 

Wishing everyone a Happy Holidays on this glorious day. Makes it easier to look on the brighter side. On the brighter side my calcinosis/digital ulcer seems to be diminishing in size, although keeps on erupting/infecting, despite my best efforts to keep it scrupulously clean and covered. These things take time I tell myself, but this one has been especially pesky, it started in 2009! :temper-tantrum: However, I can already feel hard pits on the tips of two other fingers so I s'pose it's not done with me yet!

 

Patience is a virtue that Scleroderma is teaching me in so many ways!

 

 

Hugs to all and thanks for this great site.

Suze :emoticon-hug:

Share this post


Link to post
Share on other sites

I'm sorry about the troubles, and I can so relate. In addition to bumping all the time, my fingers and toes swell so badly at night that any tiny cuts or hangnails I might have will constantly split open over and over and over again. I've even had an entire nail bed split from swelling. Then the Raynaud's really hinders healing. It's a vicious cycle we're in. Isn't it?

 

::sigh::

 

My toes look like purple Vienna sausages crammed in a can. Lovely. Good thing I can't feel them most of the time....

Share this post


Link to post
Share on other sites

Hello Suze and Punydeb

 

Oh ladies you have my sympathies! I have had foot ulcers now since December and I thought that was long enough...obviously not!

 

Yes if it's there you have to bang it endlessly, at least with ulcers on the feet I am less prone to this, with digital ulcers this must be well...endless!

 

Patience...ah yes a requirement of being a sclerodermian!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, back again.

 

I didn't realise I had any replies until today!! Yes, inked up as I'm covered in tattoos!

 

My calcinosis eventually erupted and grew out my thumb like an extra appendage. I looked like I had chalk coming out of my thumb. Now it's closed over and I can feel more in there. Glad I don't get ulcers on my feet like some of you guys though!

 

Lisa.

Share this post


Link to post
Share on other sites

I looked at my calcinosis on x ray.

 

I have a finger full of calcium, loads of it, so getting a hard bit out does nothing as I have a mountain more to come out.

 

Christine

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now