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chockers

calcinosis gone to pot

31 posts in this topic

Hi

 

Wishing everyone a Happy Holidays on this glorious day. Makes it easier to look on the brighter side. On the brighter side my calcinosis/digital ulcer seems to be diminishing in size, although keeps on erupting/infecting, despite my best efforts to keep it scrupulously clean and covered. These things take time I tell myself, but this one has been especially pesky, it started in 2009! :temper-tantrum: However, I can already feel hard pits on the tips of two other fingers so I s'pose it's not done with me yet!

 

Patience is a virtue that Scleroderma is teaching me in so many ways!

 

 

Hugs to all and thanks for this great site.

Suze :emoticon-hug:

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I'm sorry about the troubles, and I can so relate. In addition to bumping all the time, my fingers and toes swell so badly at night that any tiny cuts or hangnails I might have will constantly split open over and over and over again. I've even had an entire nail bed split from swelling. Then the Raynaud's really hinders healing. It's a vicious cycle we're in. Isn't it?

 

::sigh::

 

My toes look like purple Vienna sausages crammed in a can. Lovely. Good thing I can't feel them most of the time....

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Hello Suze and Punydeb

 

Oh ladies you have my sympathies! I have had foot ulcers now since December and I thought that was long enough...obviously not!

 

Yes if it's there you have to bang it endlessly, at least with ulcers on the feet I am less prone to this, with digital ulcers this must be well...endless!

 

Patience...ah yes a requirement of being a sclerodermian!

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi, back again.

 

I didn't realise I had any replies until today!! Yes, inked up as I'm covered in tattoos!

 

My calcinosis eventually erupted and grew out my thumb like an extra appendage. I looked like I had chalk coming out of my thumb. Now it's closed over and I can feel more in there. Glad I don't get ulcers on my feet like some of you guys though!

 

Lisa.

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I looked at my calcinosis on x ray.

 

I have a finger full of calcium, loads of it, so getting a hard bit out does nothing as I have a mountain more to come out.

 

Christine

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Hello Chockers

 

Sorry about the finger, are they going to do anything or just wait and see? It must be rather painful?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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