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docmartenmom

Constant Entire Hand Pain

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Hi Everyone,

 

I'm still trying to get a definite diagnosis of systemic sclerosis or MCTD - but I have an immediate issue and would like your advice or opinion. For the past four days, my entire hands/fingers/wrists up to the elbows (both left & right sides) constantly hurt. I flick my arms and hands trying to get it to cease but the only relief I get seems to be wrapping both hands in a heating pad. Are there any topical ointments available (or anything!) that any of you have found helpful if you have experienced this kind of pain? Ibuprofen doesn't help. My daily meds are: Hydroxychloroquine 400mg; Nabumetone 1500mg, Lansoprazole 30mg, Tizanidine (as needed) 2 mg, Lexapro 10mg and various supplements, plus weekly B-12 shots. Definite diagnosis so far: Raynaud's, Fibromyalgia, Sjogren's, Pernicious Anemia, Barrett's Esophagus, intestinal metaplasia. Neurologist trying to rule out MS due to dual hand tremors. Rheumatologist/Scleroderma Specialist in NYC trying to find out if I have scleroderma or Mixed Connective Tissue Disease. Ugh. Sorry for the long post - I just find the pain maddening! (((hugs))) Lori

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Hi Lori,

 

Please note that I'm no doctor and often get the wrong end of the stick, but the symptoms you describe sound a little like the pain I experienced with Carpal Tunnel syndrome. Certainly my fingers and wrists were dreadfully painful (at one point I felt as if I was shooting fire out of the tips of my fingers, like a superhero! :o ) so much so that it would wake me up at night and I have a fairly high pain threshold. My rheumatologist told me that there is a fairly high incidence of Scleroderma patients that suffer with Carpal Tunnel Syndrome. Several different treatments were tried in my case including ultrasound and a steroid injection into my hands but ultimately I had the decompression operation which did help a little (at the time I didn't realise that Sclero was to blame and it wasn't until later when I was diagnosed that I put two and two together).

 

Like you, I found the pain in my hands maddening and I would advise you to perhaps pay a visit to your doctor and explain the position to him/her. He could then possibly give you a correct diagnosis and perhaps be able to give you something to alleviate the pain, although in my case the operation was really the only thing that helped.

 

Do let us know how you get on.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Lori,

 

There are a number of NSAID's available in a topical gel with a prescription. They aren't so hard on your stomach and might work better since they are applied 'where it hurts'. Something to ask you doctor about when you see him about the hand pain. :lol:

 

Hope you find something that helps!


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Thanks Jo and Jeannie - my neurologist checked me for carpal tunnel and ruled it out. I'm scheduled for an EMG/EEG test in 2 weeks so maybe that will reveal nerve damage, if any? He seems to be leaning towards MS, but my neurologist was the one that diagnosed me with scleroderma when the SCL70 test came back with high titers in 2008. Since then, the titer has been negative, but like my rheumatologists say, it was there for a reason, so it must not be discounted (the scleroderma). This is a mighty long path we are walking on, isn't it? I will definitely ask about the topical - :)

 

Lori

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Hi Lori

 

I have been having a great deal of pain in my hands lately, especially my left hand, which appears to be the worst of the two for tightening. And when my hands have bad pain, for me it feels like I have pulled a muscle in my hand although I know I haven't, I also get pain in my wrist, elbow and upper arm on the left for some reason. My pains tend to come on in the evening making it difficult to sleep. The heat helps a lot as you have tried but also the ibuprofen gel helps and the creams that provide heat to the area when applied or the ones that apply cold to the area. I have to try both as it seems one time heat works the other the cold helps. They may help when you are not able to have a heating pad. I hope this helps and you find some relief from the pain.

 

Here's a hug and a couple of my spoons to help out!

 

:emoticon-hug:

 

:spoon::spoon:

 

Cheers

Jean

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