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kramer57

Case Manager - have you had one?

6 posts in this topic

Hi everyone,

My insurance offers the services of a "Case Manager" to facilitate communication between doctors and help patients manage multiple medical problems. I keep thinking that might be helpful - my PA says he never gets records from my Neurologist despite my telling the Neuro. staff to send him my records. I don't really know what a case manager does though, or if it might be intrusive. I'm not sure I want someone from the insurance company looking over my shoulder like that. Have you ever used a Case Manager? What do they do, and are they helpful?

Thanks!

Karen

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Hi Karen,

 

I'm afraid I can't advise you personally as I live in the UK and we operate a different health system, but we did have a thread here recently which sounds very similar to your query.

 

I do hope that's helpful to you.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

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International Scleroderma Network (ISN)

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Karen,

 

As you may or may not know, I'm a nurse, and having a case manager is often a great thing. With complex patients, as you know there are so many appointments, prescriptions, notes that need to go here and there, and this person takes charge of that. That way you only have ONE person to go to, instead of several. If the person is any good at it, it can help you tremendously.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Karen,

I have a case manager through my insurance company and she, now a he, has been quite helpful in helping me deal with doctors, insurance and pharmacy issues. There was another thread about this back in January. You might want to check it out. There does seem to be different opinions about it.

 

Received a letter from my health insurance company. Is this helpful?

 

It's always worth a try.


Janey Willis

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International Scleroderma Network (ISN)

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I noticed that I have not updated on my experience with this service but that is because I have not really heard from them since I called them the first time. I did receive some flyers in the mail but the advice was very simplistic (like keep warm if you have Raynauds.)

But I think I'm going to try a new service offered by a local retired physician's assistant. Seems he had a serious illness and found himself on the other side of the medical provider/patient divide. He thought he would use his personal experience to help patients coordinate their continuing care better. Since he has autoimmune issues too, he seems a good person to contact. I have an appointment with him on 4/20. I think he found demands for his services to be greater than he expected. He now has volunteers to help him volunteer!

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Ha! Sounds like that PA could un-retire and start a new career if he wanted to. I hope he helps you.

Thanks for the links, I looked at them & seems like overall, having a case manager has been a good experience. The ones that were negative were the disease-education type; I'll be sure to make it clear when making the request that I want an actual case manager. I need someone to help my doctors communicate with each other because that isn't happening at the moment. Thanks everyone!

Karen

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