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Jeannie McClelland

Dem Bones and other bits

21 posts in this topic

Thanks for the good wishes, everyone, and the nice group hug!

 

They're hoping to work on getting the shoulder tendinitis and the hips to settle down with some intensive PT, ultrasound, and (oh frabjuous joy!) massage over the next month. As for the fractures, we're kind of on a wait and see pattern. The worst ones may need to be stabilized. The kyphosis is worsening the vertebral shifting I have in the cervical spine (one is moving forward, others back). I've been on Reclast for 3 years now and it seems to have slowed down the rate at which they are occurring pretty well. The absolutely crazy thing is that I've never, ever had a bad bone density exam.

 

Oh dear, I've just realized I'm going to get even shorter. I'll end up as a short, fat, grumpy old woman with, wait for it, frizzy hair. :lol:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Jeannie,

 

First I want to say I love the line dancers!! They are too cute. I'm sorry to hear you're having so many issues with your bones. If you have compression fractures there are Interventional Radiologists who specialize in Kyphoplasty. It's a procedure that is done for compression fractures to alleviate the pain and give that vertebrae support again. My aunt had it done twice for 2 compression fractures. They basically insert a balloon to open up/elevate the area that's compressed and they inject a cement like material which will support the vertebrae. It may be something worth checking into as it definitely alleviated my aunt's pain. I don't know what state you're in, but you could call a radiology center to ask them if they have an Interventional Radiologist who does Kyphoplasty or knows one locally. Maybe too your doctor could make some calls to see who is the best one in your area. Good luck and I hope that you can get help to have some relief.

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Warm soft hugs your way. Your sense of humor helps everyone.

Thanks, and hope you will be feeling better before long.


Kay Tee

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I'll end up as a short, fat, grumpy old woman with, wait for it, frizzy hair

 

 

Oh yeah Jeannie! Let's do it and be a double act...I'll be fat, hairy and sweaty to your fat, grumpy and frizzy! We could be the next big thing...think the old geezers in the balcony of the Muppet Show! We could grump and grizzle the days away... :woohoo:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Jeannie,

 

Oh goody gumdrops, you get massage therapy, too! I've had extensive PT for tendonitis, and then of course recent surgery for it, too. I found the PT very helpful, eventually. But in the beginning the PT was a real hummer. I hope it all goes well for you.

 

I also know someone who had kyphoplasty (after a bad fall), and they rave about how easy, fast and effective it was. Miles ahead of how they used to treat compression fractures. They had it as day surgery and had complete pain relief within a day or two. I may be wrong (I often am) but I think the kypho-whatever needs to be done within a few months of the fracture occurring. So, maybe its too late for easy measures for you?

 

We'll do the Sclero Happy Dance again, now that you're on the road to recovery (from a few things at least):

 

:emoticons-line-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I looged off because I'm late for an appointment. If I had just one appointment a year , I would be running late but this is more important.

 

You are NOT and will never be a " short, fat, grumpy old woman with, wait for it, frizzy hair." You are a petit, substantial, mature lady with wry perspective and NATURALLY curly hair. You are important to us so I couldn't let even you put this wonderful woman down. No No No.........

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