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Doctor's visit

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Yesterday I went to my nephrologist to review a kidney CT and some other stuff.


My blood values have improved :) The GFR (Glomerular Filtration Rate) is back to 36 which is better than the 30 last time. Everything else is stable.


She said that the CT showed a large irregular shaped left kidney with a lot of scar tissue. No stones or blockages.There are some tiny remnants of my other kidney which look sclerotized. When I asked her what happened to my tiny kidney she didn't know or didn't say.

She doesn't think the painful spot on my scalp was anything to worry about, probably just some ingrown hair causing inflammation. There are now some areas where my skin has patches that seem a little thicker than the rest of the facial skin so my forehead now looks a little bumpy.It's not very bad and I have it covered with bangs.Though there still is an indentation in the bone it doesn't look as pronounced as the coup de sabre pictures I have seen.


I am having a lot of problems with pain in my feet and I noticed that the tip of some of my toes often look purple.Even when I wear slippers and nothing could be putting pressure on it.They are always cold and so are my hands.Even it 50 + degree weather.


And, I also went for an eye exam and they took pics of the insides of the eyes. The pic showed scar tissue in one eye and weird white bumps on the bottom of both eyes which almost look like tiny calcium deposits. Has anyone ever heard of anything like that?

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Hi Weasel,


Thanks for letting us know about your recent visit to your nephrologist.


It's a pity she couldn't be a little more precise about your kidney problems although it's good news that there are no blockages or stones and that your blood values have improved and that the painful spot on your scalp seems to be resolved. It sounds quite positive with everything else stablised as well.


I'm sorry to hear that you're having so much pain in your feet. We have a link here to Vascular Involvement in Systemic Sclero which I hope you'll find informative.


Thankfully I haven't suffered with eye problems such as you describe, so can't advise you from my own experience; however I have included a link here to Eye Involvement; I do hope that may be helpful to you.


I expect some of our other members will be able to give you more first hand advice.

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Weasel


I'd want to know what had happened to my kidney as well! :emoticon-dont-know:


Could the cold issue with your hands and feet be Raynaud's? if so have a read of the link in particular prevention, it's always better than cure!


Take care and keep posting.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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