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Margaret

Throat issues

14 posts in this topic

Hi Everyone,

 

It's been a while since I have needed help but tonight Gareth told me his throat hurt again....it's been sore on and off for several months, along with ear infections. He's been treated with antibiotics and OTC allergy meds but tonight he told me "Scleroderma back (in his) throat". What would that be? Is that Parotid gland near the throat area....isn't that the one that gets swollen and sore with Sjogren's? He's due to be back in to his primary care physician this Friday for an ear recheck so I can ask questions then.....if I know what to ask for!!! :emoticon-dont-know: I'm wondering if these recurrent ear infections could be sclero related, too?

 

Thanks Everyone,

Margaret

 

PS....for the new people, my son is Down Syndrome and Autistic, with very limited speech. I've been coming to this site for help and answers for almost 5 years!!!

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Hi Margaret,

 

The Merck Manual has a good article on salivary gland disorders and maybe the symptoms listed might help you and Gareth narrow down what might be causing his sore throat. My guess, just as a mum, would be maybe the lymph glands could be the culprit since he's had recurrent ear infections. (Poor kiddo, ear infections are really awful!) I have heard a blocked salivary gland is painful too, so hopefully his doctor will be able to pinpoint the problem upon examination. Will you let us know what he has to say? I hope he can 'fix' it.

 

Warmest wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Margaret,

 

I'm sorry Garrett is more sick than usual and I hope he feels a little bit better soon. Give him an extra hug, just from me, okay?

 

I've become well acquainted with my parotid glands over the years, so much so that I've even taken several Hospital Honeymoons with them. So, on those grounds alone, on this one thing, I know whereof I speak.

 

The parotid gland(s) are the same gland(s) where you get the mumps. On both sides, they are located directly under the ear, along the jawline. When they swell up due to parotitis (infection or a Sjogren's-like attack) you can very clearly and easily see the swelling just by looking at the face, it is obvious and unmistakable. In my case, I also had redness over the area and fever each time they inspired hospitalization, and it is very painful, in the jawline plus it can cause pain in the ear, which can radiate like TMJ pain.

 

If his throat is more the problem, it could be anything from acid reflux to a cold, whatever, even strep throat. Let us know what you find out at the doctor tomorrow, will you?

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Dear Margaret,

I'm sorry to hear about Gareth. I hope you get an answer on Friday. :emoticons-i-care:

 

miocean


ISN Artist

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Hi Margaret,

 

I am sorry to hear that Gareth has been suffering with a bad throat and earache. I really sympathise; a sore throat and earache are really horrible symptoms to put up with.

 

I'm afraid I can't add anything to the good advice that Shelley and Jeannie have given you, but I do hope that Gareth's doctor is able to prescribe something to make him feel a lot better on Friday.

 

Do let us know what his doctor advises, won't you? :emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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:emoticon-hug: :emoticon-hug: :emoticon-hug: Hi Margaret, It's nice to hear from you but sorry it's because Garth isn't feeling well. I don't have much else to add other than what you received already, so I'll just pass out some hugs.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Jeannie....thank you, for that link on Salivary glands. That was very informative.

 

Shelley.....he doesn't look like he has the mumps or that area is swollen. I was thinking thyroid, maybe, but I'm not a doctor. Does thyroiditis hurt?

 

His discomfort/pain seems to be in the neck area itself, between his vocal cords and mouth. :unsure: He's perforated his left ear drum twice since December and his strep tests always comes back negative. He's been, pretty much, on antibiotics since December. He never tells me when he has an ear ache, so I don't know until he perforates it. :excl: I was just so surprised that he said "Scleroderma back". I will ask the primary care physician to run blood work tomorrow.....thyroid, sed rate, etc. Maybe that will shed some light on what's going on.

 

Thanks for all the help, Everyone.

 

Margaret

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Hi Margaret,

 

How did things go at Gareth's doctor appointment? I hope he's doing better soon, from it all.

 

:emoticon-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Shelley ,

 

I *think* this doctor is overwhelmed with Gareth!!! :unsure:

 

It's a new primary care physician and he started with ear/throat infections (Feb&March) and went to knee/hip pain that was X-rayed a couple of weeks ago. He wants him to be seen by a Gastro doctor since he hasn't had an Endoscopy in over 2 years....Gareth's other Gastro doctor moved and I haven't felt the need to track a new one down. He's sending Gareth to the same Gastro doctor that he uses....a good sign, I guess!!!

 

On to the hip X-ray.....sclerosis of both femoral heads. I asked if this sclerosis had any connection with Systemic Sclerosis and he "didn't think so." He's setting up an appt with an Orthopaedic doctor to discuss pain management and *drum roll* possible hip replacement surgery!!! He's ONLY 22 years old!!! I didn't find anything in the Medical site about the two being related.....anyone else have hip issues from sclerosis?

 

Thanks, again, for all your help and thoughts.

You guys are the backbone I need to get through all this!!!

 

Take care, Everyone.

Margaret

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Hi Margaret,

 

What did the doctor say about the sore throat? Is he going to continue with antibiotics?

 

Oh boy, that hip thing sounds pretty alarming. Did he by any chance mention avascular necrosis? I believe (could well be wrong, of course) that collagen-vascular diseases are frequently listed as one possible cause of avascular necrosis (and femoral head sclerosis) because of the impairment of the blood flow to the joint. You must be just about beside yourself with worry over this. Hopefully the orthopedic specialist will have better news.

 

Here are a couple of :emoticon-hug: :emoticon-hug: for you and Garth. I'll keep you in my thoughts.

 

Warmest wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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<<Did he by any chance mention avascular necrosis? I believe (could well be wrong, of course) that collagen-vascular diseases are frequently listed as one possible cause of avascular necrosis (and femoral head sclerosis) because of the impairment of the blood flow to the joint. >>

 

Jeannie....yes, he did!!! He whipped off AVN like I should know what it meant.....I didn't!!! :emoticon-dont-know: Thank you.....now I will know what to ask the Orthopaedic doctor.

 

Anyone else with hip problems caused by their Scleroderma?

 

About the sore throat....that is why he's referring him to the Gastro doctor. He *thinks* it's reflux. I am glad he likes Gareth!!! :VeryHappy:

 

Take care, Everyone.

Margaret

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Hi Margaret,

I am so sorry :( to hear that Gareth is experiencing problems again. At my last scleroderma specialist appointment a couple of weeks ago she whipped out the "something or other necrosis". All I heard was the necrosis part and said, "well that means death" and she told me the only thing for it was a hip TRANSPLANT which I had never heard of. I researched it and it seems to me like transplant and replacement are interchangeable. (Someone correct me if I am wrong). Here is the Mayo Clinic page for Avascular Necrosis .

 

Steroid use can cause it, and it mentioned Lupus, so to me that links to scleroderma. Also heavy alcohol use, which I'm sure is not the case with Gareth. I'm glad your doctor likes Gareth, that is so important with his disabilities. I have a non-verbal sister-in-law who is mentally disabled. She just had a hip transplant (age 40+) and did very well. She actually recovered quicker than those I know who have had one. I guess she was in so much pain and unable to communicate it that anything was an improvement. The nurses all loved her and they had no problem understanding her needs as she has her own way of communicating and understands most of what you say to her.

 

I am having problem with my thumb joint right now and will bring this up to the hand surgeon I will be seeing and also my nephrologist because dialysis and kidney failure can also cause it.

 

miocean


ISN Artist

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Hi Margaret,

 

I'm so sorry to hear that there's a problem with Gareth's hips. It must be so worrying for you and I do hope that the orthopaedic specialist can help him and that he won't require surgery.

 

I'm thinking about you both and here's a couple of :emoticon-hug: :emoticon-hug: to keep company with the ones Jeannie's given you.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Margaret

 

Really sorry to hear Gareth is under the weather, but, with a fantastic, clued up, caring mum to help him along with a super medical team behind his back I'm sure he'll be back on form very soon, and they will get to the root of the problem and ease his symptoms for him, send him our love, won't you!.

 

Let us know how you both get on ok.

 

Hugs and warmth to you both

Lynn :emoticons-group-hug:

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