Gizelle

These Symptoms Are Depressing

4 posts in this topic

It's been a long time since I've posted or even been here. I had a really good couple of weeks. No pain, swelling, burning, nothing. Then BAM. Burning between my fingers, extreme fatigue, extreme itching and pain. I felt so good that I thought maybe the diagnosis was wrong. That can make you feel very sad. My hubby and friends went to our camp this weekend, for a big outdoor party, down the road. I'm home because of all my symptoms. I have so much pain in my arms and hands that I wouldn't be able to hold onto the ATV, even as a passanger. Once again I'm the party****er. The story of my life. Sorry, i just had to rant.

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Hi Gizelle,

 

I am sorry you are having so much pain again and had to miss out on the fun times. I know how frustrating that is....you feel so good for awhile that you do think maybe the past pains/etc. were all in your head. Then, wham! It is all right back and you know you weren't imagining things before. That is how it is with me....constant waxing and waning of symptoms. I do hope your pain subsides again soon!

 

Warm wishes,

Heidi

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Hi Gizelle,

 

I feel for you. I am always considered the "party****er" as well. Actually, when I was first diagnosed my friends and family used to tease me ALL the time. They now know that I don't have a choice in the situation. I used to be a social drinker, enjoying a cocktail on the weekend. With being on so much medication, I had to decide what was more important. Obviously, I think we all know our health is more important. Now I look at it like, when I am feeling really pretty good - that's when I say HEY! We're doing something today! I realize that those good days need to be taken advantage of!

I'm sorry you were feeling blah. Hope there's a better day tomorrow :)

 

kellyann

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Hi Gizelle,

 

Oh Hon, I am so sorry you are not doing well right now. It is really tough when our health gets in the way of doing things we want too. It can be very discouraging.

 

I hope you are feeling better today.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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