ladyfay

Need Pain Relief for Calcification on Thumb and Finger Tips!

10 posts in this topic

I have VERY painful thumb and inger tips where the chalky calcification points are appearing on the surface. The pain and itching :o are driving me CRAZY! In the past I've used raw cucumber to help relieve the pain, but that doesn't seem to work any longer.

 

Anyone have suggestions or recommendations?!

 

Thank You for your kind help and considerations :thank-you: . Dermatologists and doctors here in Portland, Oregon are very little help so far.

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Hello Ladyfay

 

Please see our calcinois resources. I have never had calcinosis so can't make any recommendations to help you, I am sure others will though because I know from reading other posts that many suffer with calcinosis.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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International Scleroderma Network (ISN)

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Hi Ladyfay,

 

Sorry to hear that you're in so much pain with Calcinois in your thumb and finger tips.

 

Like Amanda, thankfully I've never suffered with it, so can't advise you from my own experience, but we have recently had a thread on the UK forum about Calcinois which I hope will be helpful to you.

 

As Amanda has said , I expect some of our other members will be able to give you some first hand advice.

 

I do hope that the pain soon improves for you.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

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International Scleroderma Network (ISN)

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Hi Ladyfay,

 

I'm just joining in on the "don't have them but am really sorry you do" dance line. I do get horribly deep splits in my fingertips and heels, so deep they bleed, so I can definitely sympathise with you on the pain. I hope somebody has a helpful answer for you soon. In the meantime here is a :emoticon-hug: just for you.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Ladyfay

 

Sorry, I can't help either...but I'm pretty sure I'm learning all about the pain in fingers too. Had a cut and I'm on about day 45 and it still hasn't fully healed!! The first 30 days or more I pretty much used round the clock antibiotic...woke in the night with unbelievable pain (this has been my first experience with this so long and I have never in my life had such pain from a small cut...guess the raynauds has part to do with it, don't know for sure but...?). Now it's just kinda ugly, only slightly tender and chapped alot...time to cream it since it's now got a new layer of skin I think. I sure hope you find relief and soon because I can only imagine now how painful that must be for you! Good luck!


Sending good wishes your way!

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Ask your doctor for Lidocaine patches that you can cut into smaller patches that will fit your fingertips. It has relieved most of the pain for short periods of time for me in the past!

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For me they have only caused real pain when breaking through the skin or starting. In fact, pain is a warning to me that something is starting.

I have noticed that keeping the area warm helps. Also, keeping from bunping them can help too. I sometimes put padded bandages over them when I am doing something where I would likely bump them.

I have found that once they have broken though, they don't hurt very much at all. I have never had any itching.

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Years ago I hads trouble with these on my fingers. When they form near a nerve, the finger could not be used, since the slightest touch caused extreme pain.

 

My doctor at the time, a family practice physician, operated and removed them. He would inject lidocaine at the base of the finger to numb pain, then cut into the finger with a tiny scissors-like tool to remove the calcium deposit. It worked very well.

 

The healing process was somewhat painful. Due to this, I found it was best to only have one removed at a time (otherwise, too much pain).

 

Good luck,

 

Craig

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Hi Ladyfay,

 

I'm sorry you have calcinosis and that it hurts so bad. I agree with the others that a trip to the doctor is in order. Sometimes they can be removed and if not, local anesthetics might help. Even in the backwoods, a normal primary care doctor or dermatologist should be able to offer some help.

 

Sometimes doctors misconstrue things, too. If you happen to just go in complaining of the pain and ask something for it, they may consider that you are "drug-seeking". However if you make it clear that you are interested in local pain relief only and would really like it removed, if possible, that can open up new doors. Sometimes they just won't do anything until we let them know we are fed up. They might argue that if they remove it, it might just come back. Which of course, it might, but don't you deserve the chance to find out?

 

I don't think it has so much to do with you living in a remote area. I think it is just that calcinosis is often left to its own devices, unless we up the ante on its importance.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Ladyfay...

I have a terrible, painful, large calcinosis and understand what you are going through only too well. See if you can get a referral to a hand specialist, particularly one who is board certified.

They can be debulked if they are still small, but that comes with its own risks too. See if they can help you while it's still early. Mine is too late for that unfortunately.

I often sleep with gloves to keep my fingers warm, and I keep this particular finger way out of the way and don't do anything to harm it.

It's my sincere wish that progress is made in this area, because unless you've had to deal with this particular issue, you can't imagine what it's like.

I describe it to people as having an infected tooth, as good an analogy as any, since it hurts all the time, you can't use it, and it's a part of your body you use all the time.

Good luck, and keep trying to find someone to help. The shoulder shrug is just not acceptable to me anymore.

Mary


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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