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Chopper

Caffeine

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I was reading in the forum guidelines of things you can and cannot post and I was surprised to read about caffeine sensitivity and it's adverse affects on scleroderma and raynauds. For several years I have been sensitive to any caffeine and I wonder if that's not a coincidence. I hate the way caffeine makes me feel, terrible dizziness, and coffee even makes my face breakout!


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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Chopper, caffeine can cause vessel constriction. Many of us with Raynauds already suffer from vessel constriction. We can have coffee but we need to limit ourselves to only a couple cups daily. If Raynauds is severe enough then giving up coffee for no Raynauds attacks or painful fingers, numbness or swelling is a good thing. It was good getting to know a bit about you today in the Chat forum. Keep reading and asking questions.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Ah yes, that naughty substance that lurks in my dark, delicious friend...coffee. In my pre scleroderma life I gave caffeine up for a few months and actually felt much better, more relaxed for having done so but it didn't last...I was eventually seduced by the dark stuff! :lol: Thankfully having since developed Raynaud's it has remained mild.

 

If you are considering giving up caffeine don't go cold turkey or you'll have a major headache for a number of days, wean yourself off it instead.

 

Alas, for me I will forever be a caffeinated coffee devotee :wub: :wub:.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Tea is my poison. Good, strong, black tea~ It bothers my 'gullet' and I rationalize that holding the hot cup helps the Raynaud's, plus if I don't have my daily quota, my husband starts hiding. The folks up in the Friesen Islands of Germany have a saying: "Kein Leben ohne Tee." No life without tea. It's a quality of life issue here. :lol:


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Chopper,

 

Another coffee enthusiast here!! ;)

 

I get Raynaud's and do try to limit my coffee intake because of it. I only really drink tea first thing in the morning but unfortunately whenever I have either drink I do like them to be strong! I've got to have some pleasure in life, though!! ;) :lol:

 

It was lovely to meet you in the chat room and I do hope we'll speak again!


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I really enjoy tea but my daughter persuaded me to try the decaf variety since her doctor had told her to cut out the tea! She used to drink very large mugs of tea all day long and developed severe headaches, after changing she felt much better but still enjoys her mug of tea albeit decaf. So I now drink decaff tea and also have bought decaf coffee for my espresso machine and make my own lattes and cappuccinos which doesn't seem to affect my Raynaud's.

 

Buttons

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I'm bad too...I always drink my decaf at home...but when I get to work...it's not so anymore and like you Amanda, that lurking dark stuff is good (and in chocolate too :lol: ). My Raynauds is still fairly mild I guess although it seems to like the colour blue this year too.


Sending good wishes your way!

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When I gave up coffee, I started the hunt for a good herbal tea, and I found a wonderful substitute in rooibos (roy-boss) tea. My favorite flavors have been tiramisu for the mornings and peach for the afternoon/evenings. There are many wonderful flavors though. I even noticed a nice side effect in my complexion. With so many diet restrictions that I have, I'm so glad that I can still handle dark chocolate!


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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I guess I'm fortunate that I don't like coffee, tea or colas. But my weakness is CHOCOLATE!!!! Although I guess milk chocolate, which is my favourite, doesn't have much caffeine, does it? I'm guessing it's probably just the fat and sugar that are particularly bad in it...

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