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summer

loop ileostomy anyone!

4 posts in this topic

I am on a waiting list to have a loop ileostomy, hopefully within the next 3 months, and am just wondering how many people on this forum that have had to go down this path?. And also their experiences, pros and cons.

 

I have Limited/crest scleroderma diagnosed in 2007.

 

Many thanks

 

Summer :emoticon-dont-know:

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Hi Summer,

 

I can't offer any personal experience, but here is a link to the Cleveland Clinic's page on ileostomy/colostomy surgeries. I hope it goes well for you.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hello! I am newly diagnosed, but even though GI troubles are my main concern I haven't reached that point yet. I can't imagine what you've been through to reach this point?! I hope someone will come along with something to share! I hope it goes well for you! Let us know!

 

Chopper


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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Hello Summer

 

I really hope you don't have to wait long and that the operation gives you relief from your symptoms I remember you said in a previous post that you were having to visit the toilet about 20 times a day and this was preventing you from getting out of the house. I have interstitial cystitis and when in flare I am tied to the toilet, it can be miserable!

 

Please let us know how things go and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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