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mydaddy

My husband tested positive for scleroderma

33 posts in this topic

Hi Lydia,

 

Colonoscopies are part of normal medical screening (even for healthy people after a certain age).

 

Many scleroderma patients suffer from irritable bowel syndrome or similar g.i. issues, so like as not, his tests will come out just fine, even if he has significant symptoms. The prep is horrible though and in my experience, it seems to get worse all the time as they keep extending the length of days of starvation and drinking prep beforehand (at least, on me). Plan on your hubby to be suffering even more during the prep. It's a great time for him to get caught up on any movies that he's missed, even though it will be without popcorn.

 

The test itself is an absolute breeze. He'll be sedated to the point where he feels very happy but still dimly aware of the proceedings. I had always had mine without any sedation until the last time. (I've had more colonoscopies than I can count, as I have a history of ulcerative colitis.) Then I was furious that I had taken the test "cold turkey" for so many years! Why, I left there profusely thanking the doctors, nurses, clerks, even the janitor for the "wonderful experience!". What can I say, I am just plain slobbering when I am under the influence.

 

In short, plan on a very happy hubby with a pretty good appetite and pick out an after-procedure restaurant to go to ahead of time. He'll likely be in a great mood, and famished, and it will give you both something to look forward to.

 

Here are some warm hugs for both of you.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hy Lydia

 

Me too, I've had many of them for screening and mine have really been a breeze. I agree, he should not feel a thing, the sedation should take care of that. Prep, well, definitely not so great but you just gotta do it!


Sending good wishes your way!

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Shelley, thank you so very much for giving me heads up on what my husband is going to go through before his procedure.

 

i will definetly pick out a good restaurant...... thanks

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Hi Lydia,

 

I am SO, SO late in welcoming you to our Sclero Family. However, I am so happy that you (and your hubby) are with us now and I'm positve you won't regret a minute of being here :high-five: !

 

As you know, having a chronic illness yourself, it's so important to take care. It is a process in seeking out diagnoses, through all of the testing, etc. Yet, our hope is that your husband can be treated (appropriately) soon, for his present health issues.

 

As a Sclerodermian, who also has a husband with chronic illness, we are greatly in tune with one another and more sensitive to each other's health problems. As Shelley so eloquently spoke in her message to you, being one another's caregivers, it can work ;)

 

I'm glad your hubby is scheduled for his colonoscopy, but please please TRY not to worry about what it might be, as it's important for you to take care of you also :emoticon-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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thank you so much susie.......it means a whole lot to be supported by such wonderful caring people. PRICELESS.......

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That's too bad they couldn't have done both scopes at one sitting. That's what they did for my husband. The jokester that he is, he asked the doctor to please the tube on his esophagus 'first'. :VeryHappy:


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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:lol: Chopper, that was really funny.........made my day.........

 

:lol: debonair.........

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