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delkins33

NYC Surgeon for Nissen Fundoplication

4 posts in this topic

Hi--

 

I know folks probably can't post specific doctor recommendations here, but would appreciate a PM response if possible---or suggestions for resources to find doctors. It's been recommended that I look into this procedure...and that I do it with someone that's very experienced in it. I can do it in NYC or in Baltimore. So far my research has come up with people out of California, Chicago or the Mayo Clinic. Thanks

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Hi,

 

I can recommend a great doctor here in Denver, but that doesn't help you much~ My fundoplication went like a dream and made an enormous difference in my quality of life, not to mention probably benefiting my lungs quite a bit. If your doctor(s) are recommending it, I'd go for it.

 

You know what I'd do? First, ask my rheumatologist, and then my GI doctor. If you don't get any joy that way, I'd google "Nissen fundoplication + NYC" (or Baltimore) and then see if any of the hits are associated with a hospital with a scleroderma center. Have you considered Philadelphia? I know that Thomas Jefferson University has a scleroderma program and they also have a good fundoplication record.

 

One of the questions to ask when choosing a surgeon is how many fundoplications (total) he has done and how many in a year. Also, ask what his experience is with patients who have motility disorders. You should also consider the distance you will have to travel for treatment and post-op follow-ups. While getting a good surgeon is most important, it is something to think about, especially in the event of any post-op complications.

 

Good luck and let us know how you are getting on.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi,

 

I just want to mention that your inquiry for a good surgeon for a Nissen fundoplication is extremely important. At the center where my husband had his done, they do a very brisk business in trying to undo the damage done by inexperienced surgeons from outlying areas. It is enough to have one surgery, without having to have several more just to undo the damage from the first one! And since it is not an emergency surgery, it is extremely worthwhile to investigate surgeons and their track records. A great Nissen is a beautiful thing to behold; my husband has never had a whit of heartburn since his surgery. He can even eat a bratwurst with onions and go straight to bed, with no heartburn. (Children, do NOT try that trick at home, especially if you haven't had a Nissen yet, as you may live to regret it all night and half the next day.)


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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