Jump to content
Sclero Forums
luvbnmom3

Tight Palms/fingers

Recommended Posts

Hi all, I was wondering if any of you recall early symptoms of skin tightening on your hands? I have Raynaud's & a nailfold capilaroscopy with enlarged & irregular capilaries....low/positive RF, clubbing, & nothing else positive really.

 

What's been happening is I notice that after I wash my hands & dry them on a towel, that with in a minute or whatever, when the remaing moisture leaves, all the skin on the underside of my hand (including fingers) is SO tight & shiny that I don't even have my normal range of motion & you can see skin being pulled from the bottom side of my wrist, like it's being pulled into the palm of my hand.

 

The tigntening I haven't really experienced before there, but I do get it over my knuckles when I'm at the computer, my skin looks like webbing from knuckle to knuckle.

 

New to me this winter, as far as raynaud's goes, is the horrible burning pain in my skin on the fingers that go numb the fastest. It's like holding onto a hot pan in the oven....I didn't have that last year when the Raynaud's first showed up. Any of this familiar to anyone?

 

Thanks for your time!

Share this post


Link to post
Share on other sites

Hi,

The tips of my fingers are very tender and painful. I don't have the pain in my palm and I don't have the shiny effect on my hands. My podiatrist told me that the skin on my toes is tightening and I have horrible pain on the tops of my feet. He thinks that is the tendons tightening. I do have some shiny red on my toes. I didn't really answer your question. Take care,

Nan

Share this post


Link to post
Share on other sites

Hi, luvbnmom3, it sounds familiar. I have raynauds too, they are cold all the time, and I'm in the early stages of hand involvement. My fingers are swollen and the wrinkles are disappearing on some fingers. On a couple fingers there is callused looking skin on the side of the finger around the knuckle. Some knuckles have yellowish looking lumps, it's like my knuckles look knobbier. They don't hurt. I keep getting tiny cuts or splits on my knuckles. I itch everywhere, and I use lotion every day.

 

On top of my hand between thumb and index finger is swollen, and the skin is reddish or brownish. When I try to put my hand flat, there is a lot of pulling at the thumb, with visible lines of pulling in the skin. I have to put some effort into straightening the fingers, since I have the tight palm & finger skin like you described. One time I had a tiny sore in the line on my palm, as if it split. Luckily it healed up quickly.

 

Best wishes,

Karen

Share this post


Link to post
Share on other sites

You describe exactly how my hands felt and looked when the skin was hardening and the fingers started to curl! Of course at the time I didn't know what was going on so I started buying every kind of lotion on the market and nothing worked. I finally got some relief from an oatmeal based OTC lotion. Like Nan, my fingertips also became very sensitive to touch and hurt when I bumped them. The fingers also started swelling and I couldn't wear my rings. This was also when the curling of the fingers started. Once I was diagnosed and started on methotrexate, all this went away. In fact, my skin actually became soft again, meaning I got the wrinkles back.

 

To prevent the burning caused by severe attacks of Raynaud's please keep THE WHOLE BODY warm. Wear layers and don't let yourself get chilled. If the body isn't warm, there's no way to warm the peripherals. Here's some tips for preventing Raynaud's attacks.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Luv,

Ask your rheumatologist about physical therapy. I've been going for a few weeks now and my range of motion/mobility has returned to normal. My curling fingers are straightening some. I do continue to lose strength but she has given me gentle exercises and stretches to help with the pain, stiffness and mobility issues. I was prescribed 4 weeks but we are only going to do 3 because my PT feels I can do what she has taught me at home.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Mari, I have pulling in my thumb too when I try to put it flat, and swelling in it. I showed it to my Rheumatologist and he said it's not bad enough for treatment yet. I don't have the pain that you describe. Please tell your Doctor - there is no need to suffer in silence. Maybe he can recommend something to help.

 

Best wishes,

Karen

Share this post


Link to post
Share on other sites

Hi love,

 

The palms of my hands and soles of my feet look like they've been laminated--especially my feet--and the pain starts as the blood flow slows down. It's the burning pain you get when frostbite begins, and sometimes feels like I just stepped on a live electrical wire in my toes and the ball of the foot. When that sensation starts, it always means I have to keep close watch on my feet since they aren't all that visible beneath all those socks and the moccasins, unlike my hands! For too long I passed off the sensation, but it caught my attention last August when I had no shoes on and realized I had all out "frostbite" on a warm night. The raynaud's is definitely getting worse this year, and that's a big reason I don't get to the computer much these days since this corner of the house is very chilly!!! Have you ever looked into Cialis or Viagra? I don't take either one, but they might be in the near future if the attacks get worse. Glad we have meds out there!

 

 

Hi Mari,

 

My tendons are (and have been) tightening seriously in my hips, upper thighs, shoulders, neck, and forearms, and it can hit very quickly in some areas. At this point, I use a muscle relaxer and a LOT of stretching exercises, but you're right about being kept up at night by either the pain or "crawliness" of the feeling. If something else shows up that can help, I'll give you a holler!

 

Best to both of you,

 

Elehos

Share this post


Link to post
Share on other sites

I have also recently been to a hand therapist. She stressed the importance of keeping the webbing between thumb and finger flexible and gave me a number of stretching exercises which I do everyday.

 

I also bought a $40.00 pafaffin wax bath which I use everyday. It is so awesome! Right afterwards my hands feel almost like my old hands.

 

My hand therapist also put me in touch with her supplier of massage tools and I bought a mini vibrating hand massager with 4 attachments. She suggested I pay particular attention to my large knuckles when using the massager.

 

So I have gotten into this routine each night and it has really helped with my flexibility.

 

1. Paraffin bath

2. Vibrating massager

3. Massage in moisturizer with glycerin and lanolin

4. Stretching

 

Sounds like a lot but I do it while watching TV after the kids have gone to bed and it's not an inconvenience.

 

My therapist also suggested tracing your hand (like you did in kindergarten at Thanksgiving time :) ) and then you'd have a reference point in knowing how you're coming along with your stretching and flexibility.

 

My right hand is way worse off than my left in terms of flexibility but after my routine I can see a difference.

 

I hope some of what I have passed on from my experience will be helpful to you.

 

If anybody wants the name of that massage tool provider I will be happy to PM it.

 

Take Care,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Mari,

 

I bought mine (even though I am from the States) over the internet. So, you may want to try that route.

 

Warm wishes,

Heidi

Share this post


Link to post
Share on other sites

Hi again Peanut,

 

Sounds like we are living parallel lives. :lol:

 

I just finished my hand therapy early too and for the same reasons. Initially she wanted to see me for one hour appts 2x/week for 4 weeks but we did about 2 one hour appts and 2, 1/2 hour appts and she felt that since I had the paraffin bath at home I culd continue what she showed me on my own.

 

My hands weren't BAD off to start (no curling yet) but I wanted to nip it in the bud because I can feel them progressing rapidly.

 

Glad you are doing good with your hands too. It is very discouraging (to say the least!) to lose hand mobility, even a little bit.

 

I'm encouraged by what Janey said about how her hands improved remarkably after she started Methotrexate (sp?)

 

I don't think Cellcept has done a thing to slow the progression of my skin and musculoskeletal involvement and who knows if it has REALLY helped my lungs. I kinda wish I were on something else. But I'm not the doctor and what do I know anyway?

 

Keep up your good work on your hands and so will I!

 

Love, Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi love, I want to thank you for starting this thread. For awhile now my hands have been doing exactly what yours are and I can't straighten them. My G.P (who is taking care of everything) said that yes the palms are very hard but.....scleroderma starts at the tips of the fingers and then tightens and curls down from there. He said the palms aren't involved at the beginning until after the fingers have curled. I'm beginning to wonder if he knows what he's talking about. He agrees that I have something going on, positive ana, severe Gerd and swallowing probs, raynauds, telangecasia on face, arthritis, fatigue, high b.p, low GFR, ect. but doesn't think that I have scleroderma. I'd really love to think he's right, I'm trying to get on with my life but I know that I'm sick. Your post has given me hope that, it's not all in my head!

Hugs, Piper

Share this post


Link to post
Share on other sites

Hi Piper,

 

My rheumatologist told me the same thing...that the tightening/hardening always start at the tips of the fingers...but I really don't think you can say ALWAYS about anything that has to do with this disease and I remember several others on here saying that theirs started on their palms or at the base of their fingers. So.....who knows!

 

Warm wishes,

Heidi

Share this post


Link to post
Share on other sites

Mari,

Any Beauty Supply shop will carry wax machines. You should be able to purchase most products without a Cosmetology License. Also, you could ask your hair dresser to get one for you if you aren't allowed into the Beauty Supply Shops. Your hair dresser can get the machine and wax for you. Hope this helps. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×