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Matilde Acosta

Scleroderma and Attitude

5 posts in this topic

All that we have to live day to day, with scleroderma, we know it is not easy, it takes a number of elements that we put into practice to facilitate the relationship with our family and closest loved ones, it is necessary to maintain serenity to the symptoms and to feel that people are on our side, and to remember that their suffering, as well.

 

First, we must stand for a while on their side, and feel admiration for the patience you have to see our suffering, for the unconditional love they give us to be careful and watch for our health. We should not blame anyone for what we have, who knows why we were chosen, but what is certain is that difficult situations make us grow spiritually, make us stronger and help us understand the suffering and approach them, either to share our situation and learn something from them or to help lift the spirits.

 

The love we give back to our loved ones is very valuable to them. I speak as someone who has the disease, but also I have a son, a chronic renal patient, and that is when a family suffers ill suffering is doubled, and properly so tell them to show understanding and loving with people who care, responding always in love. As much as scleroderma attacks us, our loved ones still deserve the best of our feelings.

 

Remember that we are given the courage to face our dear friend scleroderma, which we must face with courage and serenity to accept no matter how it affects our lives. When we approach scleroderma with great faith and hope, always with positive thoughts and attitudes, then we have a condition that has changed our lives but should not change our way of living. We can share with family and loved ones all the moments of happiness and joy we can and let them know how valuable they are to us.

 

Today is a very special day for us to appreciate our caregivers, who are happy do everything for us.

 

Matilde Acosta

ISN Support Group Leader for Venezuela

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Hi Matilde,

 

What a lovely message and how true!

 

Here's a very special :emoticons-group-hug: for all of us and our families!


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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How true Matilde, how true. Scleroderma didn't just change my life forever but also my husband's life. I have to remember that it's our scleroderma journey not just mine.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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