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I think this idea is smashing. You are a real trouper, Barb and I love the irony (albeit regrettable) of a cooking show led by someone who does not eat.


Anything that can raise awareness of healthy eating is good for all of us. Good luck, sweetie.

Warm wishes,



Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Good job I'll be behind closed doors. The very sight of me feeding via a tube whilst reciting a mouthwatering dish couldn't be more contradictory, could it?

I love the idea of incorporating a Raynauds attack whilst creating a dish -- Whoops! there goes the tip of my finger, don't worry as it adds flavour!

My gran used to say. "Never trust a thin cook" well if she could see me now she'd be trying to feed me up with mountains of food.

I guess it's my contribution to help me get over the fact that I can't eat. I've cooked more stuff recently that I've ever done before and it's sort of satisfying to see my family tuck into my efforts.

I think I finally realise that food is much more important than just a plate of pleasure, it's a nescessity. I've been down the road of starvation believe me and not being able to eat was torturous at the time, so hungry you cannot speak, walk or think logically. Now I'm happy with my situation, I just want people to relise the importance of good nutrition and if I can make it simple and interesting it might just give someone the inspiration to do it!

Just preparing dinner -- Spaghetti Bolognese, let's see if I can make as much mess as last night!


Best wishes

Barbs xxx

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Barbs, I'm so excited for you. You might want to be the Phantom Goo-met instead of gourmet or as you wrote goumet. It is so much fun to read all that you seem to wet your appetite with. Keep up all the good things you do for others. I know you cook things blackened. Not all of us out here are into blackened, delights. Find someone else to do your prep work. I'm not into canibalism. Fingers don't appeal to me. Fish fingers anyone! I will see if this goes through. I am still in Florida and trying to keep up with everything from several peoples computers. I hope everyone has a pain free pleasant day. Sheryl

Strength and Warmth,



Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Congratulations Barbs!


I applaud what you are doing. Don't even get me started on children's nutrition....I have fits when I visit my son at his lunch time in the school cafeteria. You wouldn't believe what the public schools in the US try to pass of as "healthy" !


Even though we qualify for reduced priced school lunches at only 40 cents a meal (and I can't pack a lunch for that price) I started packing my son's lunch for him because I was disgusted at the "food" I saw.


And get this, the school thinks its doing a great service by offering breakfast but they serve junky sugary cereals and doughnuts! I was like......."Where's the FRUIT?!" Then I remembered, Oh yeah probably can't afford fresh fruit. But seriously, how hard would it be to put out some apples, bananas or oranges for pete's sake?


I am not a nutritionist by any stretch of the imagination but it doesn't take a nutritionist to see garbage. If I had the time or energy right now, I'd be leading a crusade to completely overhaul the system.


Well, I said don't get me started but there you go and do it anyway. :D I'm off on my tangent again.


I wish I could listen to your program. Thanks for looking out for the kids! Have fun with your new career!


Love, Barefut

Take care,



Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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This is exactly my point....... I cringe at the diet some kids live on. My own daughter even comments about her friends. I can't be too critical of certain establishments but I think peer pressure, clever advertising and inviting surroundings are all to blame.

My daughter went into town with her friends and for lunch they decided to go to a burger place. My daughter hates burgers and wouldn't eat a meal. Her friends all thought she was weird but she stood up and said " I'm not eating carpet burgers and fatty fries" and duly left. I was so proud of her, not because I have a vendetta against this burger place but because she stood up for what she believed in.

She works at a childrens nursery 2 day's a week and she's horrified that some of the kids don't know what fresh fruit looks like. Try and give them any kind of veg and they refuse to eat it, preferring reformed chicken shapes and fries.

This is why I love Greece so much. There is a wealth of good healthy fresh food and my daughter loves it. I don't think there is one thing she hasn't tried whilst we've been over there. Last year we brought along her friend and although getting her to eat the local meals was a bit difficult at first -- she now craves for the same stuff back here. Her mother was delighted that she came back and wanted fruit and veg and meals that she would never eat before.

I'm fairly critical of life in general, particulary that we seem to shop in the large supermarkets where everything is under one roof. No one seems to take the time

to shop any more and anything that is quickly thrown into the basket will do. I know because I've done it myself then got home wondering why I bought such rubbish. We always buy fresh now. Nothing beats going to the local market and haggling for a full box of fruit or veg. It's half the price of the supermarkets and twice as fresh! The local butcher provides us with the meat and we can choose the cut rather than stare at it through a wrapped see through platter.

The amount of money we have saved this way is astounding -- sure we still go to the supermarket for other consumables but not for the main diet.

The local council here are trying to close our markets preferring big business. I want to see our local markets thrive, it's good for the people and very good for the farmers who produce the stuff.

So you see -- I can go on all day about the need for proper nutrition and all it's issues. Looking at your reply Barefut, I'm not on my own!

Best wishes to you all

Barbs xxx

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