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Amanda Thorpe

Pulmonary hypertension or fibrosis

2 posts in this topic

Hello All


Just a general enquiry really, if you have pulmonary hypertension or pulmonary fibrosis what symptoms did you have/do you have and did they include headaches?


My shortness of breath has returned but only upon exertion thus far. After having myocardial fibrosis and heart failure last year my constant shortness of breath disappeared when I had my pacemaker/defibrillator put in.


I have an optimisation echo and rheumatology appointment next month but in the meantime I am of course speculating as to what could be causing my shortness of breath. I know you can't say for certain so let's have some fun speculating! :lol:


Take care.

Amanda Thorpe

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Hi Amanda,


Ahh...pulmonary fibrosis!


My first symptom was a dry, irritating cough particularly if I exerted myself and then a worrying shortage of breath which I shouldn't have had, as I was very fit at the time. I remember walking up a stiff incline with my dogs and absolutely heaving by the time I got to the top; I think that was my first indication that this was perhaps not a general run-of-the-mill chest infection and was more serious. :unsure:


I don't have pulmonary hypertension and my pulmonary fibrosis was thankfully caught early enough (at the inflammation stage) for the Cyclophosphamide treatment I had to be successful, for which I'm eternally grateful. There is still fibrosis on my lungs but nothing as bad as it could have been if I hadn't had the treatment; also because my lungs were in pretty good shape to start with I haven't needed to use oxygen (not a good look!! ;) )


I'm really sorry to hear that you're suffering with a shortness of breath; I certainly didn't suffer with headaches so I don't think that is particularly a symptom of pulmonary fibrosis although I did have many other painful aches and joint pains. I had most of the classic symptoms except clubbing of the fingers and weight loss.....I should be so lucky!!! ;) :lol:


It's a good thing that you've got your optimisation Echo and rheumatology appointment next month and hopefully that will be able to pinpoint the cause of your breathlessness a little more.

Jo Frowde

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