GocartMoz

Raynauds In Shower?

9 posts in this topic

Does anybody elses hands turn bright purple when they enter the shower? Mine do. I have Raynauds, but I find the shower phenomena odd since I take hot showers and the color changes usually happen in the cold. Just wondering if this happens to others.

 

Dave

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Hi Dave,

Yes this happens to me as well. I find that when I am getting readyt to enter the shower, there is atemperature change since I am not fully covered. Once my body aclimates to the warm/hot water it gets better. For the first 5 min or so my hands are definately blue.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Ditto on what Lisa said. And then of course when I get out of the shower and another temperature change - here comes the purple again and with one finger "the white".

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Dave,

 

Yes, I find the same thing whenever the water temperature is too hot. Raynaud's can happen with too hot or too cold, but most people seem to be okay with the "too hot" part. I even have to be careful using rewarming devices, since sometimes they are so hot that they prolong the episode for me.

 

To resolve the situation, take only moderately warm showers. Start the water running a few minutes before you get in; memorize where the dials are so that you can get the same temp every time, and be sure to stay in the warm zone, never too warm nor too cool.

 

The room temperature also needs to be warm for me...if it is too cold, yikes, I can nearly turn blue from head to toe. Even use a space heater if you need to, and make sure the room is toasty before showering, then dress (warmly) immediately after.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Raynauds can be especially sensitive to any temperature change. The fact that you are wet even though the shower is warm can trigger an attack, that's why I sometimes wear plastic disposable gloves over my normal gloves if I know the weather outdoors is going to be wet.

I go to Greece in the summer. The temperature can be over 40 degrees celcius that's about 108 degrees F I've had some lovely colour changes in my fingers even though I'm sweating and so warm that I can't stand the heat at times. Sweat can also trigger an attack as this is the body's cooling mechanism and with this disease it's all topsy turvy!

It's not uncommon to have an attack in the shower, bath or in the sun so I guess the answer to your question is pretty clear.

Weird lot aren't we!

Best wishes

Barbs xxx

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Yes, it happens each time that I shower. I am having an attack right now as I type. Anything can set me off...Take Care

Nan

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Hi,

Yes, it is yet another weird feature of this disease. My hands, knees and feet go "Patriotic" in the shower, even the bottoms of my feet go paper white, before blue and the red set in. Even the slightest draft can set off an attack.Sometimes this is the only way I can "thaw out" is by taking a warm/hot shower. Take care and stay warm!

Patty

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Hi Dave,

 

I was just going to post something about this, and it was usually just my feet turning purple in the shower, but today my hands looked downright bruised. The cold affects my feet terribly, but not my hands as much, oddly enough. Seems like I'll be taking hot showers while holding ice packs in my hands now (lol).

 

Best wishes to you,

Elehos

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