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marsha

Sclerodactyly

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For the last few years when I go for my walk my right hand swells to the point where I can not close it farther than a loose fist. It is tight and hurts to try almost like I am going to rip the skin. Do you think this is the S in CREST? My Rheumatologist told me he didn't think I had the S, cause my skin isn't "shiny". I think it is, well shiny for my skin anyways.. any info would be greatly appreciated.. Thanks all

Marsha

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Hello Marsha

 

I have sclerodactyly hands myself. My hand involvement started out with swelling and a pins and needles type sensation on waking and once the skin tightening began it quickly took over my entire hands.

 

Obviously it's impossible to say whether you are going to develop sclerodactyly or not but if you do it's not the end of the world that I thought it would be.

 

Take care and keep posting.


Amanda Thorpe

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International Scleroderma Network (ISN)

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Hi Marsha,

 

Sorry to hear you're suffering swelling and tightness in your hands and fingers.

 

I have Limited Sclero but I don't have Sclerodactyly and I only have minimal shiny skin on the extreme tips of my fingers. However, lately my fingers have become more painful and tight again (a little of how they were before I was on my medication.) Unfortunately it does seem to be a feature of Scleroderma.

 

On one of my visits to The Royal Free Hospital they gave me a series of hand exercises to do to help to keep my fingers mobile. I've included links to some exercises and also some more information on hand and joint involvement which I hope you'll find helpful and informative.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

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International Scleroderma Network (ISN)

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I just read an article that was completely NON scleroderma related, that talked about people's hands swelling, and getting tight when walking. It's a circulation thing. They suggested that when walking, hold your arms in a 45 degree angle with fingertips pointing towards the sky every 5 minutes, and this will help with it.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thank you guys so much, its the small things that make us feel as if we're going crazy... at least me anyways... I am going to look at the exercise page..

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