• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
scampie5

Lung function worse, need a good scream

4 posts in this topic

I had a letter from my Lung specalist after discussing my case with a doctor from Brompton Hospital they have decided that my lungs are rapidly getting worse due to signs of emphysema and Sjogren's. This is added to what I already had, hardening of the lungs. I also have asthma. It makes sense to me now as I have a tickly cough and my throat is dry and I wake up almost choking some mornings. My eyes and nose are also dry.:temper-tantrum: Also at last they have the result of the 48 hour heart monitor it shows that I am having palpitations, intermittent SVT and sinus tachycardia. No wonder I am so tired all the time. I have a scan on 6th June with several blood tests, lung function on 7 th June, then see specialist on 9th June. Hubby will come with me as there will be so much to take in. Problem with medication is 1 my Allergies and 2 I have Hep C. :emoticon-crying-kleenex:

 

I will keep you posted.

 

Thanks,

 

Lynn :emoticons-group-hug:

Share this post


Link to post
Share on other sites

Oh Lynn, I am sorry to read about all the problems you're having. :(

 

One good thing is that your lung specialist has discussed you with The Royal Brompton Hospital, so you should be receiving the very best treatment for your heart and lungs; at least you can have confidence in them.

 

Please let us know how you get on with your appointments and tests over the next couple of weeks.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Lynn

 

It's such a good idea that your husband is coming with you, you do need A N Other with you when you receive a lot of test results especially if the results are not so good. Last year I had my sister with me when I received the myocardial fibrosis and heart failure diagnosis and at that time it felt a bit like "game over". Needless to say it didn't turn out to be so as bad as bad news feels at the time it can be improved. This year my husband will be with me when I have my ECHO and get the results that I was initially expecting to be good until my shortness of breath returned some weeks ago...

 

Will you be considered for a pacemaker in view of your heart issues because they're marvellous things you know.

 

Needless to say let us know what happens on the 9th and take care in the meantime.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Oh Lynn, not nice news, but at the very least, you now have answers and as Joelf mentioned, you are under the care of the best, so that has got to be of SOME comfort to you.

I'm slao glad your hubby will be with you when you go on June 7th.

 

Please know you are in my thoughts and I'm sending extra soft :emoticon-hug:s over the ocean to you.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0