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Kathy D

Shawl-Sign and V-Sign

5 posts in this topic

I learned of these two clinical signs while researching during my initial diagnosis. I have always had a red v shaped rash on my chest below my neck, but I remember testing negative for anti jo-1, or Dermatomyositis back then.

 

I am now 8 months pregnant and have recently noticed increased muscle weakness and the rash on my chest is now twice as big and it now covers my shoulders and the back of my neck too.

 

Does anyone else have this, or know if it is specific to Dermatomyositis? Any input is greatly appreciated.

 

Thanks,

 

Kathy


Diffuse Scleroderma Diagnosed March 2009

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Hi Kathy,

 

Regardless of what it might be, you need to go to the doctor ASAP because of your pregnancy. Not to scare you, but rather to motivate you to action, rashes during pregnancy can sometimes indicate conditions that could be harmful to both you and your baby. Dermatomyositis would be one of the conditions the doctors would explore, among many others, of course. I'd suggest you call your local emergency room and review your symptoms with them, to see if you need to be seen immediately or if it can safely wait until morning. The reason I suggest that is because I'm not a doctor, I have no medical training at all, and a professional needs to make that judgement call.

 

Please let us know what you find out, won't you? Meanwhile, take a deep breath....relaxation in....worries out....relaxation in....worries out. Again, not to alarm you, but to motivate you to action so that no stone is left unturned for you to have a delightfully healthy, bouncing baby!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thanks Shelly,

 

I didn't mean to worry you. I should have added to my post that I also see a perinatologist that specializes in Rheumatic diseases. I showed him the rash and he said to mention it to my rheumatologist at my appt day after tomorrow, he was not alarmed in the least but called it "flaring a bit".

 

So nice to hear from you!


Diffuse Scleroderma Diagnosed March 2009

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Hi Kathy,

 

Oh whew. I was nearly worried sick! Okay I'm already sick so maybe that's not the most apt description. Now let's hope you pass muster with the rheumatologist.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Kathy

 

I don't have any input about the rash but wanted to say congratulations of the pending baby! How wonderful!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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