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LisaBulman

Been away for a while...

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Hello everyone!

 

I have been offline for a few months now and slowly starting to return to the forums. It has been a crazy few months! I will apologize now, this is a long one! Back in February my daughter Grace, who will be 11 in August, has brain surgery to help with her Chiari Malformation. We traveled to New York to have the surgery done by a Chiari specialist. She did great throughout her hospital stay and her recovery at home. Kids are just amazing and heal so quickly. She was a trooper, cried throughout her physical therapy but knew it was only temporary pain and that she needed to do it in order to get back in the pool and start training again. She is a competitive swimmer, although she is not allowed to dive, she is still amazing in the water. She qualified for states this year. The day before the meet, we were in NY for an appointment. This is when she found out she needed the surgery. We traveled home, got up very early the next day so she could compete. With the weight of the surgery on her shoulders and her having a difficult time breathing (a symptom of her Chiari), she got in the pool anyway. She came in first in her heat and moved up 36 spots in the rankings! Amazing Grace! Now she is recovered, back at school, back in the pool and training. She is still tired and her endurance isn't what is was, but she is getting there.

 

She recovered faster than I did. I had no idea how much her surgery would wipe me out. It took me weeks to get back to normal and catch up on my sleep. Over the past year I had developed a bursa sac on my left elbow that has been infected now four times. About six months ago my doctor suggested we watch it because it was draining on it's own through a tiny hole in my skin on my elbow. I agreed. I went in last month to see him and he said it is now time to have the surgeon look at it because of the infections, calcinosis and now when it drains, it literally explodes and shoots out. I think it is kind of fascinating but gross at the same time! In between all of this, I have torn my MCL in my left knee. We are trying to let it heal on it's own at this point. I go back for a recheck on Friday. Personally I don't think it's going well since my knee still pops out but I will wait to see what the specialist says.

 

With all of this, I am still the maid, chef, taxi driver, master scheduler, dishwasher, and mom!

 

I will try my best to catch up on all that I have missed!

 

Hugs,


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Lisa,

 

You sure have a plate full! And it seems you have the personality to take charge and run with it! Sounds like your daughter has that spark too! Glad to hear things went well. I have to confess, when it comes to things like your bursa sac, I tend to be more fascinated than faint-hearted and grossed out! But I'm the type to pick up a bug for a closer look rather than run screaming. However, I hope it gets under control very soon! And your poor knee too!

 

Chopper


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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Lisa, it's so great to have you back! As you know, we have really missed you around here, and especially, me. You made Grace's brain surgery sound a bit easy here, compared to the real life adventure of it all. I'm not at all surprised by the toll it must have taken on you.

 

I'm sorry your knee isn't better yet. It only has a few more days to straighten up and fly right. I was going to say something about, "with any luck" and then realized you haven't had an overabundance of luck lately. Let us know how it turns out on Friday, okay?

 

I am going to do the happy dance (with obviously fine MCLs) to welcome you back:

 

:emoticons-line-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Lisa,

 

Goodness me, you certainly have had a mass of things to cope with; it's wonderful that you're able to post so positively. :you-rock: Your daughter sounds such a brave person and I'm so pleased she's come through her surgery so well.

 

A hearty welcome back!! :emoticons-line-dance:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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How wonderful to hear of your daughter's success. Only a first for goodness sake.

 

I hope your problems resolve as successfully.

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Lisa,

It's so good to hear something from you even if a little bad is mixed in with the good. Well, we all know where Grace gets her inner strength. That's a no brainer. Just look at her mom,the maid, chef, taxi driver, master scheduler, dishwasher, and person that still finds time to be the mom! I would tell you to slow down and get rid of some of that stress but that would be like telling Grace to stay out of the pool. So I'll just say what I always say - You are amazing!!!!!!!!!!!!!! Thanks for catching us up on your crazy, crazy world. You always make me realize how easy my life is. :VeryHappy:


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Dear Lisa,

It is good hearing from you again! It is very uplifting to read about your daughter's strength and bravery, we all know where she gets it from. Both of you are true inspirations!

 

Best wishes with your elbow and knee.

 

miocean


ISN Artist

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Hi Lisa!

 

It IS great to see you again! We really HAVE missed you, but had no idea you were so inundated! :o

 

Yes, I couldn't agree more, in that Grace has your drive! May she gain that strength and energy so she might enjoy her swimming to the greatest degree!

 

Even though you always seem to manage to get things done, please take extra care of yourself? I hope your elbow does better now and that your MCL can be taken care of.

 

Here's hoping you and Grace can heal up enough to enjoy summer :happy-dance:

 

Soft Hugs coming your way!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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