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tngrits

Remodulin side effects

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Hi everybody. I have been on the Remodulin therapy for a month now.

 

The dosage is increased every 3 days. I'm having lots of side effects: headache, extreme restless legs, sore muscles, etc. I am wondering how much of this is the medicine or if it has stirred up the fibromyalgia really bad. Anybody else on this treatment? If so, do you mind telling me about your side effects?

Linda

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Hi Linda

 

Sorry, I have no experience with that...just fibro which won't help you. Someone will chime in soon no doubt. I hope those symptoms subside for you and soon!


Sending good wishes your way!

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Hi Linda,

 

Oh, I am sorry that you're suffering some unpleasant symptoms, especially as you had been feeling a little better in your last post.

 

Bearing in mind that I have no medical training or actual experience of Remodulin I can't really advise you but I've found a link here regarding Remodulin dosage adjustments and I wonder whether perhaps adjusting the amount of the dosage might alleviate some of the effects you're experiencing whilst still continuing to make an improvement.

 

Hopefully, some of our other members may be able to help you with some first hand experience.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Linda

 

I am sorry you are having awful side effects, it's the last thing you need. Is it possible that the side effects may wear off because sometimes it's worth persevering with.

 

Please let us know how it goes.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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