Jump to content
Sclero Forums

Doctor Adding New Medication

Recommended Posts

Hi everyone! I hope y'all are having a good weekend. I was feeling so much better on the Remodulin but it has been increased enough that the side effects are awful. Maybe I'm being a baby but they really are bad. The restless legs is the worst. Also the site pain is worse. But, doc says I am doing better. Still trying to learn to eat more but not much luck. We are using a quarter of a Phenergran tablet before each meal and that does help a little--makes me dopey though. If all goes well the doctor will add Letairis to my meds. He said there will be more side effects :( . Then in one month add another med (don't remember the name). He thinks it will take all three to get me below stage 4. As bad as the side effects are I feel so blessed I have finally moved somewhere where the doctors understand about scleroderma and especially pulmonary hypertension.


Link to post
Share on other sites

Hi Linda,


I am sorry to hear that you're still suffering such horrible side effects from your medications. Sometimes I think we have to weigh up the pros and cons of each medication in order to get an overall improvement and it is reassuring to know that the doctors that are treating you do know about Scleroderma and are prepared to try and find the best combination of drugs to treat you.


I've included a link to Letairis to give you some more information which I hope you'll find helpful.


Do please keep us posted on how your medications are working and how you're getting on with them.

Link to post
Share on other sites

Hello Linda


I am sorry you're having more side effects but if it takes you below stage 4 it will be worth it in the long run...well that's the theory anyway...and don't knock dopey, he's a friend of mine! :lol: Seriously though dopey is how I would describe myself at the best of times.


Take care.

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...