Sign in to follow this  
Followers 0
annkd

What's up with my arms and legs?

8 posts in this topic

For the past three days my arms and legs have been progressively getting weaker and weaker. They feel like they are being squeezed and it does not let up. My arms are so weak that I find it hard to lift things or even open a door. Along with scleroderma I have fibromyalgia. Could this be related to either? It is making me nervous because it is not letting up. Any thought would be greatly appreciated.

- Ann

Share this post


Link to post
Share on other sites

Hi Ann,

 

Where the squeezing sensation is concerned, it could well be that your skin is getting tauter, as that is how mine felt when it happened. However, my skin also relaxed after some years, plus, that sensation did seem to ebb after a while. Knowing what was going on helped too.

 

My expereince (with Fibro) has been the same as yours, in that I've experienced weakness as well. Also, I don't have upper body strength any longer and I used to be quite strong, for a woman, too.

 

I hope that things settle down for you soon. In the meantime, please share this with your doctor, as something can be done to help with the tautness of your skin, more than likely.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks Susie, I had not even thought of skin tightening. During my last appointment with my rheumatologist he mentioned that my skin was changing on my arms (leathery) and I didn't put this together. My goodness, another change for me. I think I may have to try and get an earlier appointment. Thank you so much.

:emoticons-thankyou:

Share this post


Link to post
Share on other sites

Hi Ann,

 

My experience with fibromyalgia is also the same as yours and Susie's. I also experience a feeling of tightness in my legs periodically and that is often because I've got some swelling going on, even when it hasn't hit the puffy stage. It scared the daylights out of me the first time it happened. :unsure:

 

Here's hoping you get an earlier appointment and it is absolutely nothing!

 

Warm hugs and best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

Share this post


Link to post
Share on other sites

Jeannie and Susie - it is scary. The unknown is not a comfortable place to be. I have done my research and it is clear to me that I need a dialogue with my rheumatologist. I will let you know what I find out. Your good wishes are appreciated. hugs, Ann

Share this post


Link to post
Share on other sites

Ann,

 

The first thing that I would want to know is the values of my inflammation indicators (ESR [sed rate] and c reactive protein). These are very common blood tests. If positive, they might indicate an inflammatory process such as myositis or some other flare-up. These values tend to be negative with fibromyalgia.

 

Bear in mind that these tests are "non-specific", which means they could be positive for anything that could cause inflammation (such as the flu). But they can provide good clues.

 

Craig

Share this post


Link to post
Share on other sites

Hi Ann,

 

Thankfully I haven't suffered with weakness in my arms and legs such as you describe but my fingers were certainly very tight and swollen as some of the others have stated.

 

We've recently had an interesting thread here on Weak legs and arms which I hope you'll find helpful.

 

I agree with the other members in that I think you should perhaps get an earlier appointment with your rheumatologist in order to discuss your concerns with him. I do hope that he will be able to reassure you.

 

:emoticons-group-hug:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0