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Louxx

Tanning/Sunbeds

11 posts in this topic

Hi,

 

I'm curious to find out if anybody with Linear Scleroderma has ever used tanning beds/ sunbeds? My sister has started to use them and wants me to go with her next week, i'd love to go only a couple of times to get a little tan but I'm afraid of sunburn (since I got pretty easily burnt on my leg yesterday) does anybody know if someone with scleroderma should or should not go near a tanning bed?

 

Thanks, Louise :)

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Hi Louise

I was told to stay out of the sun and tanning beds because of the medication...prednisone and imuran. I think more so the prednisone. So if you're on that, I wouldn't think it would be a good idea. Cheers - Lisa


Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

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Hi Louise,

I do not have linear sclero, I have diffuse. I have used tanning beds in the past. There is a lot of controversy about their use and where I live there is an extra tax on using them and I could be wrong but you have to be a certain age to use them.

 

There are different kinds of bulbs, different lengths of time that you are in them, beds you lie down in (make sure they are clean) and booths you stand up in here. New bulbs are more powerful that old bulbs.

 

I don't know what others will reply. I found they made me feel better (I am a girl of summer) :happy1-by-lisa-volz: and used them in the winter. I don't use them anymore because I get enough sun exposure and am taking ant-rejection medication for a kidney transplant the causes skin cancer but my husband will go and tan a couple of times in the winter before we go to a warm climate for vacation to prevent burning in the sun.

 

Years ago (1960's) I lived next to a woman who had very bad psoriasis and a light box was built in her basement. It was a stand up closet with lights but I do not remember what kind. It helped her.

 

I'll be interested to find what you find out and decide to do.

 

miocean


ISN Artist

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Hi Louise,

 

Welcome to these forums!

 

I was going to say exactly the same as Lisa (Ladyhawk); I'm also on Azathioprine (Imuran) and Prednisolone and was told by my consultant that one of the side effects of the medication is an increased susceptability to sunburn and skin damage. I have a pale "English Rose" complexion anyway and enough wrinkles to be going on with, so whilst everyone else is walking round bronzed and tanned I'm as pale as death!! ;) :lol:

 

I'm not a doctor and have no medical training but would be very wary of using sun beds; I've included links to sunbed use and also Linear Scleroderma which I hope you'll find interesting and informative. I suggest that before you use the sunbed you should have a word with your doctor or rheumatologist to get their advice.

 

Do please keep posting and let us know how you're getting on. :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Louise

 

I've never been a lover of the sun or its effects or faux effects resulting from sunbeds so I am biased against any form of tanning. Take into account medication and its effects I just don't think it's worth the risk.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Louise,

 

Welcome to the Forums. I missed your first post, glad to have you join.

 

I'm afraid I am mostly with the others, the big risk factor being the medications we take. I've got several that warn against sun exposure. I think I would check with your chemist about any medications you take to see if that might be an issue.

 

I live in the high Rocky Mountains where the UV is already pretty ferocious and we supposedly get 300 days of sunshine a year, so I get plenty of sun whether I want it or not. I like the sun, don't get me wrong, and like Miocean, it makes me feel better - it seems to help the constant ache. I think if I lived where I didn't see a lot of sun (I used to live in Scotland), I would do my research and find out which tanning beds are safest, then maybe have a couple of very short sessions.

 

Best wishes,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Louise,

 

Welcome to Sclero Forums! I'm sorry you got a severe sunburn and send my best wishes for a speedy recovery.

 

As for sunbeds, do you really need help aging your skin before it's time? The best prevention for wrinkling and avoiding skin the texture of leather, is to stay out of the sun (and tanning booths!) and use ample sun protection when you are exposed to the sun anyway. Get just enough to keep your vitamin D levels up each day. You'll thank your lucky stars as you get older as you'll be able to save thousands on anti-wrinkling treatments.

 

Beauty comes in every skin tone, but the most naturally beautiful skin tone of all is the one you are born with, so do what you can to keep it. Nobody's skin needs lightening or darkening or reddening and a bit of makeup can compensate for nearly everything. Maybe you could spend the tanning booth money on a beauty makeover or hair treatment instead?

 

Whatever approach you use, please be cautious because with either sun or tanning bed exposure, you need to consider not only beauty, but also your health. I'm sending extra warm hugs your way, but you'll be glad to know these hugs do NOT cause skin cancer or premature wrinkling, either!

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi miocean,

 

The light box treatment may have been called PUVA treatment, as I also had it but had to stop after 3 treatments, as my Scleroderma (which I hadn't yet been diagnosed with) was retaliating and I had a reaction. I ended up at the ER, where I was given an Epinephrine injection, which rectified the problem. :(

 

I also love sun exposure, but now, I really use caution.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi there and welcome to the forums.

 

With all the warnings in the media I tend to steer clear of sun exposure and haven't used a sunbed since Crippen was a boy but since my natural skin tone is the colour of a maggot and foundation doesn't suit me for many years now I have substituted my morning moisturiser for a smearing of fake tan every two or three days.

 

A healthy glow without the health risks.

 

I would give the sun beds a swerve.

 

Happy tanning.

Vanessa

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Hi,

 

Thanks everybody for the reply. I was a member here a few years ago, but my email address has changed since then so I just decided to set up as a new member.

I am on no medication for my scleroderma (and never have been)

 

Thankfully my sunburn in now healed, and it healed pretty quickly :)

 

I have noticed a little change in that area of my skin though, it is a lot more flexible since I have had contact with the sun, which doesn't come often here in Ireland.Its supposed to be the middle of summer but its lashing rain outside.

 

I still haven't decided if I will use sunbeds yet. Probably won't bother with them since I haven't really got the time anyway.

 

Thanks for the replies, Louise :) x

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