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What was I thinking?

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Hi- I posted last week about Prevacid before my endoscopy. So, I have had diffuse for 11 years and my heartburn has always been manageable with meds. For a few months before my current crisis I actually was reflux free-I elevate my bed, watch my diet, etc.


So, I changed my tea routine from Chais to flowery black tea and began to consume 3 or 4 cups on an empty stomach for breakfast as I have motility issues and am not hungry lately when I wake up. I make the tea with half milk and half water. After about a month of this I began with an acid mouth -- some reflux at nite, but mostly awful in my mouth. I had this before when I went on a gummi worm jag but it went away after a couple of days. Anyway, it has remained, so I am now on a whopping 120 mg Prevacid waiting for my tests, and crying every morning as I drink disgusting Postum, Rooibos or herbal. Then, I was fine and when I took my vitamin D, it started again. I do not know if I damaged the esoph/stomach lining or what. I am not nauseous or vomiting and have an appetite. So an endoscopy, and 24 hr probe and bacteria glucose test are coming up. Help -- any thoughts for a theobromine/tannin addict?

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That is a truly tough one~ Have you tried going back to your chai? It might be the flowery component that is the culprit. I used to love the teas made with bergamot (which might be what you are referring to) and would make a huge mug as a treat, but have had to stop drinking them. Even with the fundoplication and absolutely minimal reflux, they still bother me badly. I love chai just about as much and can still have that. Mornings for me are a mug of strong black tea with the addition of milk and honey and that's just fine.


Another thought, how about decaffeinated varieties? Most of the brand name teas also do a decaf version.


I wish you luck - you have my heartfelt and sincere sympathy and for once I'm not being funny. I agree totally with the German saying "Kein Leben ohne Tee" (no life without tea). I hope you can find something that works that you can stomach!

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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I too love to have something hot to drink in the mornings. I have spent quite a bit of money over the years trying to find a decent tea that doesn't have caffeine yet has body and flavor. I've never been able to handle coffee and tea due to the caffeine and that it makes me break out. Yet I love the full body of coffee, so I highly recommend a rooibos blend of tea such a rooibos chai. You can send me a PM if you want the brand name. Rooibos is such a nice "tisane" because it has some health benefits, no caffeine, it has body, and when blended with other flavors it can be wonderful!


I sure hope you can get the reflux under control and enjoy your hot beverage too!



Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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Hi Fragile, Jeannie and Chopper,


Fragile, I'm in agreement with Jeannie, in that wouldn't it be better to return to your previous regimen of Chais?


Should you be able to tolerate the methods Jeannie and Chooper suggested as possiblities, my hope is that things improve for you, as in no more reflux! ;)


As for decaffeinated products...My understanding/experience is that they are much harder on the stomach. My husband and I both realized cramping from decaffeinated coffee and went back to caffeinated coffee, ridding us of the cramping.


However, we may be unique in that, which would make it possibly viable for your use!

Whatever the solution, is what I hope for you, Fragile :)


Please keep us posted!

Special Hugs,


Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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