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Bowel Problems

5 posts in this topic

:blush: Hi Folks


I have mild scleroderma with R.A


I have IBS so they say in the rheumatology department.


Can someone tell me what their bowel problems are like other than me reading leaflets as they mimic what is not right and they both sound the same .


I have small problems with acid which is ok with pills. My R.A doctors says I am too mild at moment to really do much more .(You can see the difference now since my diagnosis in 4 years, but its slow.)


What are your symptoms like?


:wub: :wub: :blush: :blush: :blush: :blush:

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Hi Christine,


I was diagnosed with IBS too. I my case I had severe episodes of gas and cramping, diarrhea, and some leakage of feces from time to time. My gastrointestinal doctor upped the amount of Motilium I take and gave me another pill that I only take when things get really bad. It eases the bowel spasm (cramping), which in turn gives me a better chance of avoiding unplanned changes of underwear! :lol:


Some of my problems with diarrhea are due to episodes of small intestinal bacterial overgrowth and I take antibiotics on a 7 days on/7 days off cycle for as long as it takes to clear it up.


The acid reflux symptoms I had were pretty bad. I was coughing all the time, would vomit if I bent over and often after eating. The worst was waking up at night with my mouth filled with reflux. I had pretty continuous sore throats too. Even with proton pump inhibitors and the Motilium, things were getting worse and my doctor recommended a fundoplication. I did try changing my diet and sleeping sitting up, but that hadn't helped much either. I've had great results from the fundoplication, but it's not always an option for everyone.


I hope all that helps you. Are you concerned that the IBS diagnosis is wrong? It's not at all uncommon, about one in five people have IBS here in the USA. It isn't a lot of fun, but it can be managed.


Warm wishes,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Christine,


I have only ever had (compared to some of our other members) very mild bloating, reflux and discomfort in the gut so my feeling is that I don't actually have IBS or gut involvement but merely a slight reaction to the medication I take.


I'm sorry to hear that you're having some unpleasant symptoms but hopefully you will be able to control them with medication and they won't prove to be too troublesome.

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Christine


I have chronic constipation as a result of scleroderma, an inflated abdomen and well...let's just say when my bowels do decide to put in a day's work it ain't a happy time for me. I was diagnosed with IBS years prior to scleroderma but again constipation was the issue. My stomach used to inflate so much I couldn't do trousers up and the constant cramping...yikes!


Take care.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Today I have been to the hospital.


And yes he was saying I think your tummy has slowed down. I now take acid reducing drugs. My bowel drives me to POT is a good word for it, running to the loo and such like. So I am having a barium meal to see what's what.



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