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TamaraB

More than one positive from colonoscopy!

11 posts in this topic

As some of you know for the past month I have been experiencing severe GI problems. I had a colonoscopy Friday, we were almost certain that it was going to be colitis just from the symptoms however this doesn't seem to be the case. The doctor went ahead a did a few biopsies just to be certain.

 

I was so impressed with this doctor! I have complained so many times about most of the doctors that I have seen, in this case these results would be blamed on something off the wall and left at that...no further testing or anything would ever be done. When this doctor asked if I had any other medical conditions, other than the normal that they ask about (diabetes, asthma, etc...), as soon as I said Scleroderma he was fascinated! He began explaining the connections of Scleroderma and GI problems, something no other doctor had EVER done, as well as other related symptoms. Then when he found out that I had a pituitary tumor, he was hooked! He was not happy with leaving the issue unresolved...he wants to get to the bottom of it! YAY!!! The great thing is...he is also a family doctor and told my mother and fiance' that he would LOVE to see me as a regular patient because he finds my case fascinating!! I believe this is the doctor that I have been looking for and so desperately need!! Not only is he trying to find what is causing the GI issues (EGD Tuesday, and wants an ultrasound this week), he is also checking the pituitary function! I can not explain the weight that I feel has been lifted, I haven't been this positive in a long time and just wanted to share with you all!! :emoticons-line-dance:

 

Well Wishes,

 

Tammy

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Hi Tammy,

 

What excellent news!! :emoticon-congratulations:

 

I know myself how very important it is to have a medical team in whom I can have complete confidence; if my consultant says "Jump!", I say "How high?" ;) :lol:

 

I'm really pleased for you and hope the results of your biopsies and your other tests go well.

 

I'm joining you in the Sclero Happy Dance!! :emoticons-line-dance:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Tammy

 

That's excellent, I am so happy for you! They are always so precious when you find a good one you can connect with. Looking forward to hearing the results too!


Sending good wishes your way!

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Hello Tammy

 

A good doctor makes all the difference! I have my favourite and I hope to see him next time I am at the Royal Free, he delivered my heart failure diagnosis and spent ages explaining everything to me...marvellous!!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Tammy - that's great! Thanks for sharing that! Don't we wish all doctors could be like that!

 

Chopper


Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

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Thanks you guys for being excited with me, you're the best!! :high-five:

 

The EGD results weren't as good as the colonoscopy results but so far none of it seems to be sclero related. I had to have my gallblader removed several years ago and the bile is refluxing, causing bile gastritis. :blink: Additionally...they found I have a hernia and that doesn't help matters but I am confident that this new doctor will do all that he can. He has put me on 2 new medications...Omeprazole and sucralfate to protect my stomach. I meet with him again Friday for the biopsy, blood, and CT results and to further discuss treatment options.

 

I will keep you guys posted and THANK YOU for your support!!!

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Good news for you TamaraB,

 

There's nothing better than when you find a good doctor that you can trust, and who is willing to work with you and your illness. I hope all your test come back okay.

 

Stay Well,

 

Mary

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Hi Tamara,

 

I'm tickled pink that you've found a good doctor! I know what a great relief that can be.

:emoticon-congratulations:

:emoticons-line-dance:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Well I got most of the test results back yesterday, not as good as we had hoped. The biopsies from the colonoscopy came back positive for colitis and cryptitis. The EGD results are chronic gastritis with intestinal metaplasia. Basically, my stomach is inflammed from the esophagus down, the doctor is thinking Crohns. He has added another medication to the new, long list of drugs, sulfasalazine. We discussed steroids but decided to wait on that, try to give these other medications time to work. As disappointing as some of the results are, I am going to remain positive, it could have been worse and now I have a doctor that is working with me instead of against me!! Not to mention that you fine people are a world of encouragement and support!! :thank-you:

 

Remaining Positive,

 

Tammy

 

:you-rock:

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Hi Tammy,

 

Ah well, that's a bit of a shame that your test results weren't quite as good as you'd hoped. :blink: Still, having a really good doctor that's on the ball is a great bonus, as is such a positive attitude. Hopefully, your new meds will kick in and help with your GI problems.

 

By the way, one of my favourite songs is "Tammy", sung by Debbie Reynolds. ;) :)


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Tammy,

 

If one must be dealing all of what you are, I am ecstatic that you have found the perfect doctor for you :yes:

 

Despite the findings, you are doing a wonderful job of keeping that great attitude. As you have every reason to be,

I am also confident this doctor will be a terrific asset to you and your health care.

 

Sending over Extra Special :emoticon-hug: s to you!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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