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Pain in chest

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Hello All,


It's been forever since I have been on here! I've missed everyone.


I have systemic sine sclerosis with interstitial lung disease (ILD) and secondary Sjogren's. I have been having pain in my esophagus for years now. It is a dull, constant pain and it is really affecting my well being.


Do you think this is ILD related or GERD related? It is not heartburn but maybe it is the fact that my esophagus is a little abnormal. It hurts when I breathe and did I mention I am so fatigued? Can anyone relate and offer any insight?


I want the pain to go away! Are there pain medications for this or do we just live with it?


I am still on Cellcept and am assuming I am still stable. I go to see my rheumatologist next week for pulmonary function tests (PFTs) and an ECHO. I have an upper endoscopy coming up as well.





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Hi Jennifer,


Yes, it sure has been forever since you've been here. It's great to have you back!


It's very tough to find the cause of chest pain since it can be nearly anything with systemic sclerosis. Often hurting when breathing is due to things like pneumonia or pleurisy, so if this is new, you will sure want to see your primary care doctor right away -- because your PFTs won't be accurate if you are suffering infection or such at the time. Plus you might be sick, so you more than likely need to see a doctor to make sure you're in shape to go to see the doctor. <:emoticon-dont-know:


I sure hope whatever it is, that you feel a little bit better soon. Keep us posted and don't be a stranger again, okay?


Oh wait, I just realized you said you've been having this pain for years now. Forget that; you've probably had it checked out already? Oh dear, I'm all confused. What else is new though, huh?

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Hi Jennifer,


How great to hear from you again, although I'm sorry that you've been not been feeling very well.


I'm afraid I can't add to Shelley's advice but also hope that your rheumatologist can suggest something to help you. I do hope the results of the tests you're having will be able to give him a clearer picture of the problem and that you will soon feel much better and more comfortable.



Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Jen,


Great to hear from you again!


Hopefully the upcoming tests will shed some light on the cause of the pain and they'll have a simple answer for you. If not, how about asking for a referral to a pain specialist? I'm a firm believer in the No Ouch way of life. Who wants to experience pain every day?!


Warm hugs and best wishes,

Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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