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Kamlesh

Neuropathy

5 posts in this topic

Hi Friends,

 

I have been having severe pain and burning sensation on my lower body, particularly calf and thigh mucles. Doctors think it may be due to neuropathy. I need input on neuropathy. Is anybody else having similar situation, and what helps under such circumstances?

 

Is there any relationship between neuropathy and scleroderma?

 

Thank you!


Kind regards,

 

Kamlesh

 

 

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Hi Kamlesh,

 

Yes, up to 40% of people with systemic sclerosis (SSc, scleroderma) have some type of neurological involvement, including neuropathy. See Neurological Involvement.

 

That said, neuropathy can also be due to many other things such as sciatica, diabetes, carpal tunnel, etc. So each case must be individually evaluated. Which means you're only headed to more confusion before the answers arrive. Here are some warm hugs to tide you over.

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Kam,

 

Aren't these issues you were dealing with some time earlier that you spoke of in Chat?

 

I don't know how fussy you are about taking meds, but I too, have recently begun having problems with Neuropathy and treat it with Gabapentin, which is generic Neurontin. However, mine is from my elbow down to the end of my fingertips, where my problem has been, numbness, tingling and pain.

 

I wish you the best with resolving your present issue.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Susie, have they checked you for carpal tunnel syndrome? Sounds like the same tingling pain I had when I was diagnosed with Carpal tunnel. So many things are the same with both you and I. Keep us informed on your well being.

 

Kamlesh, have you been doing more distance or inclines on your walks/runs. Different terrains can cause more pains than usual in your calf muscles. If you are over using all the different muscle groups in your legs, thighs, ankles, and calf, then you are going to get more pain than usual. If the blood isn't circulating properly or quick enough for fast recovery then you will have more pain than usual. Your doctor can send you to someone and they can measure blood flow, and many other things that might be developing in your legs. Neurontin really might help with some neuropathy's. If it isn't a neuropathy then other drugs might help with what is going on. I was on many prescriptions in the past for severe leg and calf pain. Some things work better depending on what might really be going on. With Raynaud's blood flow to the extremities can be hampered greatly. A few products to help leg cramps, pain, tingling, charlie horses and similar happenings are Trental, Pletal, even Norvasc that is used for many things, helps with blood flow to legs and fingers. A tens unit also sends little electrical charges into areas of pain to help with neuropathy 's if needed to help bring down pain. It is very important to get to the right physician to find out what really is going on. Keep track of how often you walk, how often the pain occurs after exercise or if it happens without any physical effort on your part. If the pain keeps you up at night and how extreme is the pain and exactly where to the touch does the pain actually occur. These are some of the questions my specialist asked me when I was having similar problems. I hope you start feeling better soon. Let us know what you find out. We have missed you here on the forums of late.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Yes, I do have it (Carpal Tunnel)...AGAIN, Sheryl. As a matter of fact, I had open on the right wrist, checking for disease and endoscopic in the left in 1991. Absent of the neuropathic sensations I am now experiencing, the carpal tunnel came on quickly, prior to my diagnosis of Scleroderma, etc.


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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